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#749831 - 08/19/08 05:52 PM
Migraines-The "not really pain" pain......
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Stacy
GRAND Pooh-Bah
Registered: 11/15/02
Posts: 2010
Loc: USA
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not what I believe but what many of us are told.
Since there seems to be quite a few of us on here with Migraines, I thought maybe this thread would be a good idea.
My thoughts about this thread:
We can post our history of migraines, things we have tried, meds or not, things that worked or didn't, meds we have been on, meds we are interested in, etc. We can come here to ask questions of each other, get support (which is sometimes hard to get for this), rant, vent, whatever we need to do.
I'll post my history soon, probably in parts, it is so long unfortunately. Please include how long you have had headaches, the types of headaches-even include specific symptoms. You never know, someone might have some good info for each of us.
So, let's compare notes!
And yes, IMO this IS chronic pain, I have been dealing with these things since I was 4 or 5, this is pretty chronic to me.
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#749888 - 08/19/08 06:52 PM
Re: Migraines-The "not really pain" pain......
[Re: Stacy]
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kserah
GRAND Pooh-Bah
Registered: 10/05/04
Posts: 4928
Loc: In the moment
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This is a very interesting article about migraines. It appears there may actually be a structural difference in migraine patients. Further research may provide some answers.
http://neurologynow.com/pt/re/neuronow/f...1195628!8091!-1 Neurology Now:Volume 4(1)January/February 2008p 13 The Migraine Brain [DEPARTMENT: THE WAITING ROOM: THIS WAY IN] Smolinsky, Mike
People with migraines have differences in an area of the brain that helps process sensory information, including pain, according to a study published in the November 20, 2007 issue of Neurology, the medical journal of the American Academy of Neurology.
The study, which was supported by grants from the National Institutes of Health, the Swiss Heart Foundation, and the Harvard School of Dental Medicine Dean's Award, found that part of the cortex area of the brain is thicker in people with migraine than in people who do not have the neurological disorder.
Comparing 24 people with migraine to 12 people without migraine, the study found that the somatosensory cortex area of the brain was an average of 21 percent thicker in those with migraine.
Repeated migraine attacks may lead to, or be the result of, these structural changes in the brain, says study author Nouchine Hadjikhani, M.D., associate professor of radiology at Harvard Medical School in Boston, MA. Most of these people had been suffering from migraines since childhood, so the long-term overstimulation of the sensory fields in the cortex could explain these changes. It's also possible that people who develop migraines are naturally more sensitive to stimulation.
Dr. Hadjikhani says the results indicate that the brain's sensory mechanisms are important components in migraine. This may explain why people with migraines often also have other pain disorders such as back pain, jaw pain, and other sensory problems such as allodynia, where the skin becomes so sensitive that even a gentle breeze can be painful.
What this means for people with migraine, says Dr. Hadjikhani, is that pain should not be ignored or dismissed. Pain might have negative consequences on the brain, so people should treat early. Don't play it tough, Dr. Hadjikhani says. You could be training your brain to tolerate pain better, and this might not be a good thing.
Mike Smolinsky
Copyright © 2008, AAN Enterprises,
_________________________
Thank you, God, for Cheetos and microwaves. Great ideas.
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#749896 - 08/19/08 07:05 PM
Re: Migraines-The "not really pain" pain......
[Re: kserah]
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Stacy
GRAND Pooh-Bah
Registered: 11/15/02
Posts: 2010
Loc: USA
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I saw some article in my doc's office years ago, a copy of a JAMA article, about a doc that could pick out a migraine suffer by their CAT scan/MRI....wonder if it has anything to do with what you posted. This was at least 15 years ago and it wasn't taken as fact, something docs were just looking at. I don't remember everything the doc said he could see, but each time he was correct, he picked out the CAT scan/MRI of the migraine suffer.
Dr. Hadjikhani says the results indicate that the brain's sensory mechanisms are important components in migraine. This may explain why people with migraines often also have other pain disorders such as back pain, jaw pain, and other sensory problems such as allodynia, where the skin becomes so sensitive that even a gentle breeze can be painful.
You know, this part reminds me of something I heard a long time ago and had forgotten about. I heard or read somewhere that migraine suffers had more "brain freeze" or ice cream headaches than people that didn't have migraines. Seems to make sense in light of that article. I know I have them a lot, more than most people I know.
I'll have to do some reasearch and see if I can find anything on that.
Thanks for the info!
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#750501 - 08/20/08 07:27 PM
Re: Migraines-The "not really pain" pain......
[Re: Stacy]
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Stacy
GRAND Pooh-Bah
Registered: 11/15/02
Posts: 2010
Loc: USA
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Ok, couple of things. I mentioned to my doc about reading where they are seeing changes and differences in the brains of people with migraines. He said, yes they are, they are even seeing changes similar to what you see with stokes, but on a smaller level, like mini strokes. He thinks having migraines all the time is not healthy for the brain, that there are very real physical issues that can go with that.
He thinks my HA's right now are stress related also. He said I need to take something for the stress and asked if I thought I needed something everyday, I said not everyday. BTW, I told him I am also grinding my teeth really bad (I have TMJ also-wonder how many migraine people have TMJ) and he said that was a sure sign I'm under a lot of stress. He wants me to take xanax for the stress. Guess I can join you kserah in the high hopes. 
I also told him for the last two weeks I have required some type of medicine every day for my HA's and if I'm gonna have to do that, I prefer it be preventative, he agreed. My plan is this, if the stress (which doesn't look like it is going to be better anytime soon) doesn't get better then I am going to change jobs. He said if I felt I needed something for stress everyday that anti-depressants generally were better for you. I said well anti-depressants also work for HA prevention and he said yes, so I said let's try that also. So he wanted to me try a low does of Zoloft for a short time. If the stress gets better and I'm still having HA's like I am now, he would prefer for me to try Topomax at that time. I've never been on that one, anyone been on that one and know anything about it?
So following are the meds I'm one right now.
Zoloft 50 mg daily (I think) starting with half a pill right now.
xanax .25mg as needed...he has NO idea how much I might need it. Also taking this daily for the next 3-4 weeks waiting for the zoloft to kick in.
Midrin - up to 5 over about a 3 hour period as needed.
Migranal as needed, only 1 time in a 24 hour period. This has actually worked best for the HA's that are already very bad and have me very sick, doesn't work for the ones that are just starting. If I am throwing up my toenails, this will generally have my HA completely GONE withing 2-3 hours.
Lortab 10 mg when needed
Phenergan Suppository 50 mg when throwing up. He said I am NOT to lose anymore weight because I am throwing up so much. If I want to diet, that is fine, but he really went to the edge about the 9.5 lbs weight loss and me not dieting. Not a good/healthy way to lose weight he said.
So this is my new treatment plan, I was hoping to get back into this slowly. Two weeks ago, I had one med I took everyday, now I'm back up to all these. All aren't daily, but I hate to have to be on this many meds. I know it's not a lot compared to what a lot of people have to take, but the bad thing about having these HA's, I absolutely HATE having to take the meds. One of the things that bothers me so much about preventative, and this is the first doc that has understood this, is the feeling that something (the HA's) have control over me. They have control to the point that I have to take a med to try and prevent them. I would prefer to be in control rather than controlled.
Edited by Stacy (08/20/08 07:34 PM)
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#750578 - 08/20/08 10:05 PM
Re: Migraines-The "not really pain" pain......
[Re: kserah]
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Stacy
GRAND Pooh-Bah
Registered: 11/15/02
Posts: 2010
Loc: USA
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Until this new job, about one year now, I had been down to a bad HA a couple of times a year and really bad one every 2 years. They are still the same, no differnce in how they feel, no new symptoms, etc.
Usually I'm an after the stress is over I fall apart type person. My worst HA's would be on the weekends. I guess since the stress is not ending now, they just happen all the time.
So far I'm very pleased with the Migranal. It gets rid of the really, really bad ones like a big shot of narcotic, but it takes a bit longer. It could keep me out of the ER.
This doc is an Internist but he did more than an hour in Residency on HA's which is what most PCP do. He goes to conferences several times a year for HA's and knows quite a bit about them. I don't have to ask for meds, he offers them. My last script of 30 hydro is almost gone, he gave me another script today with refills. I have my 2 scripts from frontier and SP for backup. I wasn't going to ask him for any hydro but he said since I had been taking so much med this last couple of weeks I must be low. I also think if that stops working he will give me something stronger.
He is my Dentist's doc, my dentist's daughter (the dentists assistant) also goes there and they referred me.
He's really nice, better than any specialist I ever saw. It makes me wonder if he has someone close to him that has HA's.
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#750731 - 08/21/08 08:31 AM
Re: Migraines-The "not really pain" pain......
[Re: Stacy]
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monticello
Newbie
Registered: 06/24/08
Posts: 34
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Thanks for starting this topic!
I remember exactly where I was when I got my first migraine...3 days before my 21st birthday (I'm now in my mid-40's). From talking with other people it seems that they are very unique to each person...no one else is going to have the exact same symptoms, triggers, etc. as I do.
Long story short - I've been on Midrin, Caffergot, Amitryptiline, Darvocet, Fiorinal, and more that I can't remember. I was on Inderal daily for prevention but it made my blood pressure very low so my Dr. switched me to Verapimil. Worked great. The best invention in the whole world is Imitrex. I use the injection and is a miracle drug in my opinion!
I also needed to identify my triggers. Mine are - waiting too long to eat, being in the sun, change in air pressure (flying), roller coasters, too much of certain foods (chocolate, peanut butter, cheese), sinus pressure, or just no reason at all.
I get nauseaus, spacey, and lose fine motor skills with the migraine. Sometimes after my Imitrex, the pain will be gone but I'll have a "body migraine".
Edited to add: I weaned off of Verapimil and don't see an increase in migraines.
It was interesting to read about migraine sufferers and external stimulation. I can't stand bright lights, loud noises, crowds, too much noise, etc.
Wow...this is the most I've ever written!
Edited by monticello (08/21/08 08:32 AM)
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#751359 - 08/22/08 07:33 AM
Re: Migraines-The "not really pain" pain......
[Re: monticello]
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Stacy
GRAND Pooh-Bah
Registered: 11/15/02
Posts: 2010
Loc: USA
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Thanks for starting this topic!
I remember exactly where I was when I got my first migraine...3 days before my 21st birthday (I'm now in my mid-40's). From talking with other people it seems that they are very unique to each person...no one else is going to have the exact same symptoms, triggers, etc. as I do.
Long story short - I've been on Midrin, Caffergot, Amitryptiline, Darvocet, Fiorinal, and more that I can't remember. I was on Inderal daily for prevention but it made my blood pressure very low so my Dr. switched me to Verapimil. Worked great. The best invention in the whole world is Imitrex. I use the injection and is a miracle drug in my opinion!
I also needed to identify my triggers. Mine are - waiting too long to eat, being in the sun, change in air pressure (flying), roller coasters, too much of certain foods (chocolate, peanut butter, cheese), sinus pressure, or just no reason at all.
I get nauseaus, spacey, and lose fine motor skills with the migraine. Sometimes after my Imitrex, the pain will be gone but I'll have a "body migraine".
Edited to add: I weaned off of Verapimil and don't see an increase in migraines.
It was interesting to read about migraine sufferers and external stimulation. I can't stand bright lights, loud noises, crowds, too much noise, etc.
Wow...this is the most I've ever written!
Gosh, I've been on all these meds and more, but I've only used Imitrex only once.
Foods don't seem to bother me, but being out in the sun a long time, sometimes walking down the fabric softner aisle will get me if I'm in that "trying to get a HA but don't have one" mode.
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#751578 - 08/22/08 01:47 PM
Re: Migraines-The "not really pain" pain......
[Re: musician7]
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Stacy
GRAND Pooh-Bah
Registered: 11/15/02
Posts: 2010
Loc: USA
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Hey, I'm not giving up, I'm still gonna look around and do some research.
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#751688 - 08/22/08 06:02 PM
Re: Migraines-The "not really pain" pain......
[Re: Stacy]
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musician7
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