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#597388 - 11/12/07 07:44 PM
Fibromyalgia: Real or Imaginary?
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Administrator
Administrator
GRAND Pooh-Bah
Registered: 11/18/01
Posts: 6110
Loc: DrugBuyers.Com
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Fibromyalgia: Real or Imaginary?
M. Nergis Alnigenis (Yanmaz), M.D., and Peter Barland, M.D.
Dr. Alnigenis is a Visiting Fellow in the Division of Rheumatology, Montefiore Medical Center, Bronx, N.Y.
Fibromyalgia Syndrome (FMS), is an illness that causes pain, stiffness and tenderness throughout the body. Sufferers complain they have trouble sleeping and tire easily. 80%-90% of FMS victims are women and most are between 30 and 60 years old.
Though FMS may not be well understood, it is far from uncommon. A recent study found that 2% of all North Americans suffer from FMS, 3.4% of women and 0.5% of men.1,2,3,4,5 It is the second most common problem seen by rheumatologists in North America.6,7,8
Some doctors believe that FMS is not a real condition, but, instead, is psychological. What do we actually know about FMS?
The story uis at: http://www.thedoctorwillseeyounow.com/articles/arthritis/fibro_5/
What do you think? Is it real or psychological? Why?
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#602279 - 11/19/07 07:54 PM
Re: Fibromyalgia: Real or Imaginary?
[Re: Administrator]
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DimSumLover
Stranger
Registered: 06/28/07
Posts: 6
Loc: US - West
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I don't know how to get across to the doctors how much pain I'm in. I can tell them on a pain scale, I can pinpoint it on a picture of a human body, I can complain of it for years and they make it seem like it's not "real." It is a very, very frustrating situation to be in.
All I want is to be able to have a decent life, doing all the things that everyone else does with ease.
DimSum
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#603146 - 11/21/07 09:02 AM
Re: Fibromyalgia: Real or Imaginary?
[Re: DimSumLover]
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porini
Stranger
Registered: 02/23/07
Posts: 14
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Hi everyone- I have been reading posts, and now would like to contribute.
I was diagnosed with fibromyalgia about a year ago, after I had many different MRIs and x-rays, etc. Eventually, my GP diagnosed me with fibro, and sent me to a rheumatologist who was an idiot.
I have found some relief, believe it or not, with a yoga class offered at the new gym/rehab center located at my local hospital. I just have to take a hot bath and sometimes a pain pill to loosen up before the class, and only do modified versions of the poses. But I am finding some relief in the horrible pain and stiffness in my upper body.
Hot baths and moderate doses of pain medication, gentle stretching, a careful diet, no alcohol, and lots of sleep (when I can!) help me enormously. Of course, the only pain med I can tolerate without nausea or brain fuzzies is Hydro, and doctors are so weird about it. I could care less about a dependency on it. I only care about quality of life. I have a 4 year old who needs me desperately. When he is older, and more self-sufficient, my life will be different.
I don't take 10 pills a day (maybe 1), and I'm not a drug seeker. I hate the fact that recreational drug users have messed things up for us in chronic pain.
The rain has passed here, and the dampness is out of my house and out of my body, and I feel halfway decent today. Maybe I'll bake a pie!!
xoxo, susan
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#606128 - 11/28/07 08:42 AM
Re: Fibromyalgia: Real or Imaginary?
[Re: porini]
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bshen
Journeyman
Registered: 05/31/06
Posts: 54
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I think in time the the biological cause of fibromyalgia will be found and doctors from all over the country will call their patients and apologize for being jerks to them while they were suffering.
ROLFL!!!!! Yeah, that's gonna happen.
Just because a cause hasn't been pinned down in the still very mysterious human body, doesn't make it automatically psychological. I work in health care, I don't have fibromyalgia, but I think it would be quite arrogant of me to decide a persons suffering is imaginary.
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#670223 - 03/19/08 12:14 AM
Re: Fibromyalgia: Real or Imaginary?
[Re: Administrator]
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JokerOwling
Pooh-Bah
Registered: 07/14/07
Posts: 1214
Loc: here at the moment
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Here is a link to an article(excerpt from book) titled: The Autoimmune Epidemic: Bodies Gone Haywire in a World out of Balance
"...Imagine, if you can: the tingling foot and ankle that turns out to be the beginning of the slow paralysis of multiple sclerosis. Four hundred thousand patients. Excruciating joint pain and inflammation, skin rashes, and never-ending flu-like symptoms that lead to the diagnosis of lupus. One and a half million more. Relentless bouts of vertigo -- the hallmark of Ménière's. Seven out of every one thousand Americans. Severe abdominal pain, bleeding rectal fissures, uncontrollable diarrhea, and chronic intestinal inflammation that define Crohn's disease and inflammatory bowel disease. More than 1 million Americans.More than 2 million patients. Dry mouth so persistent eight glasses of water a day won't soothe the parched throat and tongue and the mysterious swallowing difficulties that are the first signs of Sjögren's. Four million Americans. And, with almost every autoimmune disease, intolerable, life-altering bouts of exhaustion. If fatigue were a sound made manifest by the 23.5 million people with autoimmune disease in America, the roar across this country would be more deafening than that of the return of the seventeen-year locusts."
and "..."The Western Disease": A Rising Epidemic Underrecognized and Underaddressed
Even as autoimmune diseases remain underrecognized and underaddressed, the number of patients afflicted with these illnesses has been steadily growing. Yet few of today's practicing physicians are aware of the escalating tsunami of epidemiological evidence that now concerns top scientists at every major research institute around the world: evidence that autoimmune diseases such as lupus, MS, scleroderma, and many others are on the rise and have been for the past four decades in industrialized countries around the world."
LINK: http://www.alternet.org/healthwellness/80129/?page=entire
_________________________
"A magnesium deficiency may be responsible for more diseases than any other nutrient."-Dr.Norman Shealy,Neurosurgeon&Chronic Pain expert.
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#692912 - 05/03/08 10:08 AM
Re: Fibromyalgia: Real or Imaginary?
[Re: JokerOwling]
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Bluefairy
Pooh-Bah
Registered: 06/27/07
Posts: 1027
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A lot of older doctors will still say they do not think it is real. Very frustrating.
It seems that unless you have another condition that requires treatment you are unlikely to receive treatment for fibro.
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#693152 - 05/03/08 09:16 PM
Re: Fibromyalgia: Real or Imaginary?
[Re: kserah]
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tache
Member
Registered: 07/01/07
Posts: 142
Loc: West Coast
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There are a couple of researchers in the states that theorize that FM/CFS and other disorders (RA/Lupus etc.) are caused be chronic mycobacterial infections. It seems as if the most research has been done on RA with some big improvements in health after long term antibiotic therapy. Here is one of the links which discusses mycobacterial infections and chronic illnesses. http://www.immed.org/index.htm
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#693302 - 05/04/08 10:48 AM
Re: Fibromyalgia: Real or Imaginary?
[Re: kserah]
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JokerOwling
Pooh-Bah
Registered: 07/14/07
Posts: 1214
Loc: here at the moment
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My theory is that perhaps fibromylagia might be caused by the hormones, preservatives and other artificial chemicals put into food. What about the combined effects from mobile/cell phones, wireless internet frequencies,military radars,GPS(Global Positioning Satellites),HAARP,genetically modified foods etc,etc,etc.........
big improvements in health after long term antibiotic therapy. this revelation is sure to cause dismay for those using the dubious fibromyalgia claim as a way to feed their opiate habit. I don't know what its like in the US,but you will be hard pressed to find a Dr in Australia who will prescribe opiates for FM.
_________________________
"A magnesium deficiency may be responsible for more diseases than any other nutrient."-Dr.Norman Shealy,Neurosurgeon&Chronic Pain expert.
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#693357 - 05/04/08 01:06 PM
Re: Fibromyalgia: Real or Imaginary?
[Re: tache]
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Bluefairy
Pooh-Bah
Registered: 06/27/07
Posts: 1027
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One point, while their are many doctors who have doubts about Fibro, Lupus is another story altogether.
I have yet to meet a doctor who doubts its existence, it just takes forever to receive a diagnosis. Since it is potentially fatal there is an actual result of not receiving proper treatment as early as possible. 80% of Lupus patients are female, and it has definite links to hormones.
Some patients who have many of the symptoms of Lupus but none of the ones that can be verified by blood test are often listed as fibro diagnosis. Then as the years past and they develop one of the more serious or easily identifiable issues involved with Lupus, their diagnosis is changed.
The only doctor who should be diagnosing fibro is a rheumatologist, they are trained in the condition, as well as being trained in the diseases/conditions that may have the same or similar symptoms, but have more serious consequences.
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#693365 - 05/04/08 01:30 PM
Re: Fibromyalgia: Real or Imaginary?
[Re: tache]
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MisfitToy
Veteran
Registered: 02/12/08
Posts: 643
Loc: my own sweet time
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There was a study that found that dextromethorphan (DXM) was effective in threating fibromyalgia pain. From what I have heard, however, is that often times, fibro patients get irate when a doctor tries to treat them with something other than narcotics. I think that's the sort of behavior that raises eyebrows & makes fibromyalgia patients all be lumped into the hypochondriac/drug seeker category. It's unfortunate that a few bad apples spoil the bunch. I don't doubt the legitimacy of the disease as it pertains to some people. That said, on a personal note, I have an aunt who was finally diagnosed with fibromyalgia after doctors were unable to find anything wrong with her despite her being constantly fatigued and having chronic aches and pains. This woman, for reference, weighs probably close to 300 lbs, but she was not willing to accept that her condition was due to her obesity. Now, she uses her fibro as an excuse NOT to exercise, clean, drive, or even get out of bed some days. She is also one of those types who would throw a fit if someone were to suggest she try anything non-narcotic. So while I think there are legit cases out there, I do think some people use it as a badge or crutch of sorts. I mean, who doesn't feel tired a lot of the time & have various aches and pains? It's part of getting older, as is life. Just my two cents.
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#693391 - 05/04/08 03:17 PM
Re: Fibromyalgia: Real or Imaginary?
[Re: MisfitToy]
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Bluefairy
Pooh-Bah
Registered: 06/27/07
Posts: 1027
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"I mean, who doesn't feel tired a lot of the time & have various aches and pains? It's part of getting older, as is life. Just my two cents. "
While I doubt you meant that with any sort of venom or ill will, it is that type of statement that make the blood boil of people who do have fibro.
There is no comparison between fibro and the normal aches and pains of aging or normal fatigue. It is very hard to describe to someone a bone deep exhaustion that seem to have no reason to feel. The frustration of trying to explain to someone the pain that makes your life miserable and prohibits the simplest tasks can be overwhelming.
Two sisters and I were all initially diagnosed with fibro, before it was discovered we did indeed have Lupus, along with severe abdominal adhesions from multiple OB/GYN surgeries. My 2 sisters have a different mother than I, and I can well remember their emotional pain from a mother who just thought they were hypochondriacs. She told them it was just part of life, they had to learn to deal with it.
One sister was hospitalized, and her mother and our father felt she was just trying to get out of taking care of her kids and working. They told the doctor and the nurses on the floor that there was probably nothing really wrong with her, it was all in her head. They believed the parents, sent her for counseling, etc.
Then she almost died from kidney failure. Big turnaround in their thinking.
Now their mother has the same problems, plus others, and has apologized for her attitude in the past.
Please do not assume that just because you cant see why they are sick, that they are not.
Just because doctors do not know what the problem is either does not mean that there is not one.
After all, 40 years ago it was believed by doctors in the USA that menstrual cramps were a figment of women's imaginations.
Edited by Bluefairy (05/04/08 03:20 PM)
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#693467 - 05/04/08 06:52 PM
Re: Fibromyalgia: Real or Imaginary?
[Re: Bluefairy]
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RubixCubeTO
Pooh-Bah
Registered: 08/14/07
Posts: 1177
Loc: MEAN PEOPLE SUCK!!
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"I mean, who doesn't feel tired a lot of the time & have various aches and pains? It's part of getting older, as is life. Just my two cents. "
While I doubt you meant that with any sort of venom or ill will, it is that type of statement that make the blood boil of people who do have fibro.
There is no comparison between fibro and the normal aches and pains of aging or normal fatigue. It is very hard to describe to someone a bone deep exhaustion that seem to have no reason to feel. The frustration of trying to explain to someone the pain that makes your life miserable and prohibits the simplest tasks can be overwhelming.
Two sisters and I were all initially diagnosed with fibro, before it was discovered we did indeed have Lupus, along with severe abdominal adhesions from multiple OB/GYN surgeries. My 2 sisters have a different mother than I, and I can well remember their emotional pain from a mother who just thought they were hypochondriacs. She told them it was just part of life, they had to learn to deal with it.
One sister was hospitalized, and her mother and our father felt she was just trying to get out of taking care of her kids and working. They told the doctor and the nurses on the floor that there was probably nothing really wrong with her, it was all in her head. They believed the parents, sent her for counseling, etc.
Then she almost died from kidney failure. Big turnaround in their thinking.
Now their mother has the same problems, plus others, and has apologized for her attitude in the past.
Please do not assume that just because you cant see why they are sick, that they are not.
Just because doctors do not know what the problem is either does not mean that there is not one.
After all, 40 years ago it was believed by doctors in the USA that menstrual cramps were a figment of women's imaginations.
OMG!!! So very, very well said. Thank you so much - from one who suffers miserably with fibromyalgia and a host of other ills tied into it.
I've read this thread over and over. I've been wanting to post in response to various things I've read here, but declined because I was just too pissed off or hurt (emotionally) to type w/out getting in trouble for flaming. Then I read your post and almost cried. You have said everything - everything I wanted to say.
Thank you and I'm sorry about you and your sisters misfortunes. People can be so cruel.
_________________________
If Fed Ex and UPS were to merge, would they call it Fed UP? ?
Peace, ~Rubix~
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