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#449882 - 02/06/07 01:36 PM PETITION: PAIN PATIENTS FOR PROPER TREATMENT
Ruggie Ruggie GRAND Pooh-Bah Registered: 03/25/04 Posts: 12354 Loc: Right Here	I started up a petition so please use this link to sign the petition, we need many signatures. This will be used to help fight for the proper treatment of pain. This will be sent to the proper people. PAIN PATIENTS FOR PROPER TREATMENT STOP HARASSING DOCTORS, PHARMACISTS & THE CHRONIC PAIN PATIENTS It Is Time For Our Government To Protect America's Most Vulnerable Citizens Government has failed to address the needs of the patients in pain. Over 50 million Americans needlessly suffer from disabling pain. Patients in the worst pain, those with the highest dose requirements, cannot get care because their doctors are afraid of prosecution from the DEA, Federal & Local Government, Police, etc.. http://www.webpetitions.com/cgi-bin/print_petition.cgi?99500966 _________________________ Takes a Lickin' & Keeps on Tickin'
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#449883 - 02/06/07 01:56 PM Re: PETITION: PAIN PATIENTS FOR PROPER TREATMENT
boston_pup boston_pup GRAND Pooh-Bah Registered: 12/01/04 Posts: 1716	Ruggie I just signed it and am going to send that site to others in my family. I just wonder if they will have to have a different IP address to sign it because it says you can not sign on behave of others. I know my in-laws use the same computer and so do a lot of other family members. Of course dh is spoiled and has his own computer! LOL _________________________ Patients Against The Under Treatment Of Pain
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#449884 - 02/06/07 02:08 PM Re: PETITION: PAIN PATIENTS FOR PROPER TREATMENT
superscapes superscapes GRAND Pooh-Bah Registered: 05/14/06 Posts: 3825 Loc: ohio	Bump.people need to sign this. _________________________ McCain/Palin in '09!
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#449885 - 02/06/07 02:14 PM Re: PETITION: PAIN PATIENTS FOR PROPER TREATMENT
Ruggie Ruggie GRAND Pooh-Bah Registered: 03/25/04 Posts: 12354 Loc: Right Here	Quote: Bump.people need to sign this. Thanks scapes. Hugs Ruggie http://www.webpetitions.com/cgi-bin/print_petition.cgi?99500966 _________________________ Takes a Lickin' & Keeps on Tickin'
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#449886 - 02/06/07 02:21 PM Re: PETITION: PAIN PATIENTS FOR PROPER TREATMENT
freezerdude freezerdude Enthusiast Registered: 11/05/05 Posts: 252 Loc: way out there!	I signed and left a nice little message as well. D
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#449887 - 02/06/07 02:26 PM Re: PETITION: PAIN PATIENTS FOR PROPER TREATMENT
squirelbait squirelbait Board Addict Registered: 09/04/06 Posts: 392	I just signed also.
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#449889 - 02/06/07 02:44 PM Re: PETITION: PAIN PATIENTS FOR PROPER TREATMENT
trab trab Banned. Saying other posters are stupid Registered: 12/30/06 Posts: 202 Loc: MidWest	They got a real sweet msg from me.
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#449890 - 02/06/07 03:41 PM Re: PETITION: PAIN PATIENTS FOR PROPER TREATMENT
superscapes superscapes GRAND Pooh-Bah Registered: 05/14/06 Posts: 3825 Loc: ohio	_________________________ McCain/Palin in '09!
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#449891 - 02/06/07 04:02 PM Re: PETITION: PAIN PATIENTS FOR PROPER TREATMENT
SeaSiren SeaSiren Journeyman Registered: 10/04/05 Posts: 58 Loc: Under The Sea......	I'm very glad to see someone take the action that I was thinking about doing... but wasn't sure who to send it to or how. Any of you that feel the same way, forward that link to your friends or anyone that you know has a family member in chronic pain. Let's use this internet! Thanks for starting this and please keep us informed when it gets enough signatures to submit, and can it keep going even after that!
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#449892 - 02/06/07 04:49 PM Re: PETITION: PAIN PATIENTS FOR PROPER TREATMENT
Ruggie Ruggie GRAND Pooh-Bah Registered: 03/25/04 Posts: 12354 Loc: Right Here	Quote: I'm very glad to see someone take the action that I was thinking about doing... but wasn't sure who to send it to or how. Any of you that feel the same way, forward that link to your friends or anyone that you know has a family member in chronic pain. Let's use this internet! Thanks for starting this and please keep us informed when it gets enough signatures to submit, and can it keep going even after that! I have started an activism board as well and I really need a lot of people to join that board because we have to make a difference now, we cannot let the DEA tell he doctors how to practice medicine and we cannot allow the DEA to keep doctors from under treating the chronic pain patients anymore, I should have done this a long time ago but I didn't. The more members who join the site the better chance we will have with this fight for the proper treatment of pain, we have to put a stop to this, our rights as chronic pain patients are being taken away faster and faster right now. For every 1 doctor either investigated or/indicted another 400 to 500 are scared to treat the legit pain patient. I have sections in there to post about how your doctors treat you and how we are treated at pharmacies as well, I need people to post their experiences whether good or bad because that is what may help us when it comes to the media shedding a better light on the CP'er. Thanks everyone, but remember I cannot do this alone and we need many people to fight for the proper treatment of pain. we also need to tell our stories of why we had to turn the Internet for pain relief and shed better light on the OCS's that help us live a somewhat normal life. It is time to fight for our rights as the chronic pain sufferer before it's too late. http://www.webpetitions.com/cgi-bin/print_petition.cgi?99500966 Hugs Ruggie Oh and keep signing the petition and if anyone needs a copy of the petition to show your local officials please just let me know. _________________________ Takes a Lickin' & Keeps on Tickin'
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#449893 - 02/06/07 05:15 PM Re: PETITION: PAIN PATIENTS FOR PROPER TREATMENT
susieq56 susieq56 Pooh-Bah Registered: 08/29/05 Posts: 1054 Loc: On the move	Ruggie.....what is the password to log on and see the results? Do I have to set that up somehow? I signed and added a thoughtful, well written comment (in my humble opinion) about how I am a middle aged business executive with chronic pain from TWO separate conditions. I have been under-treated, or not treated, for pain by local physicians. I stated that I have had longer and more productive consultations with online physicians that I have had with my local doctors. I added that I do NOT wish to be included in the group of "diverting, drug-seeking" people. I asked "them" (the DEA and others) to identify, isolate, and focus on THAT population rather than on ME and many others LIKE ME. Without the pain relief I receive from an online service, I could not work. I could not pay taxes. I would have a very poor quality of life. I only hope I do not harm my career by signing it - that is my fear, since of course I used my real name and city, etc. Where will this go exactly? I am in full support - just wondering????? _________________________ I thought I was wrong once, but I was wrong....
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#449894 - 02/06/07 05:29 PM Re: PETITION: PAIN PATIENTS FOR PROPER TREATMENT
Ruggie Ruggie GRAND Pooh-Bah Registered: 03/25/04 Posts: 12354 Loc: Right Here	No susieq56 if anyone could log on and look at it all then it would take away the others privacy, after all anyone who signs this is most likely using their real names and I don't think anyone wants their real names known by everyone else who may want to view the petition, it is all a matter of privacy for the people who sign the petition. But it will go to the right people when there are enough signatures on the petition. _________________________ Takes a Lickin' & Keeps on Tickin'
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#449895 - 02/06/07 05:32 PM Re: PETITION: PAIN PATIENTS FOR PROPER TREATMENT
chemsynth chemsynth Threadhead Registered: 11/07/05 Posts: 978 Loc: MA	Hey Ruggie-- this is a great thing. with what i about to say next, please don't think i'm trying to hijack this post, but.... if anyone wants to weigh in on this issue in an anonymous way, please consider the upcoming NIH survey. many of the issues that suzie identified will be specifically addressed. it is online, anonymous--in fact, we CAN'T know who participates--and all survey answers are pooled, so all data is de-identfied. Everyone please consider participating. chemsynth _________________________ If you don't like pain management in the US right now, the URL for the NIH survey is: https://infectiousdisease.tufts-nemc.org/selene
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#449896 - 02/06/07 05:43 PM Re: PETITION: PAIN PATIENTS FOR PROPER TREATMENT
susieq56 susieq56 Pooh-Bah Registered: 08/29/05 Posts: 1054 Loc: On the move	Oh, Ruggie you are right - - - DUH! I am sure no one would sign or want others looking at it if just anyone could see their names. DOUBLE DUH on me! SORRY all..... Thanks for doing this! I will also look at the NIH link that was posted, thanks chemsmyth..... (I hope i have your name right....) _________________________ I thought I was wrong once, but I was wrong....
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#449897 - 02/06/07 05:54 PM Re: PETITION: PAIN PATIENTS FOR PROPER TREATMENT
barelythere barelythere GRAND Pooh-Bah Registered: 11/29/04 Posts: 1510	Please do not shoot the messenger on this one, but it needs to be addressed. Knowlege is power and I prefer informed consent. Just be careful in all of this. You all remember Skip Baker? He really put himself out there for this issue, for years. He ran a site that even published the names of compassionate doctors by state, who would write for opiates if the condition warranted. Notice Skip is no longer around the net anymore? It's been claimed that the powers that be made his life and that of his wife's miserable. People who have written their representatives have had their letters with name and addresses forwarded on to Karen Tandy. I still believe we must band together and fight against this war on pain patients and health professionals but we must do it in massive numbers because there really is safety in numbers.
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#449898 - 02/06/07 06:00 PM Re: PETITION: PAIN PATIENTS FOR PROPER TREATMENT
barelythere barelythere GRAND Pooh-Bah Registered: 11/29/04 Posts: 1510	Quote: Hey Ruggie-- this is a great thing. with what i about to say next, please don't think i'm trying to hijack this post, but.... if anyone wants to weigh in on this issue in an anonymous way, please consider the upcoming NIH survey. many of the issues that suzie identified will be specifically addressed. it is online, anonymous--in fact, we CAN'T know who participates--and all survey answers are pooled, so all data is de-identfied. Everyone please consider participating. chemsynth Did you see my post about the conference the NIH will be sponsoring in March? I think they have made their position on the prescribing of opiates pretty clear and it's not good for CP patients.
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#449899 - 02/06/07 06:01 PM Re: PETITION: PAIN PATIENTS FOR PROPER TREATMENT
Ruggie Ruggie GRAND Pooh-Bah Registered: 03/25/04 Posts: 12354 Loc: Right Here	Quote: I still believe we must band together and fight against this war on pain patients and health professionals but we must do it in massive numbers because there really is safety in numbers. You said it, it is going to take a lot of many many people to even get any atention on this issue and we want to shed good light on the CP'er and get the media to stop the negative attention on the CPer's. _________________________ Takes a Lickin' & Keeps on Tickin'
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#449900 - 02/06/07 06:34 PM Re: PETITION: PAIN PATIENTS FOR PROPER TREATMENT
LA55 LA55 GRAND Pooh-Bah Registered: 11/10/03 Posts: 3012 Loc: West Coast	I signed and my message was not that nice, but it was to the point: CP sufferers are not the reason for diversion in this country or for crime - they are the reason the country is running smoothly. They go to work everyday and raise their children and support the economy because they are finding a way to have their pain treated appropriately...you are targeting the wrong people!
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#449901 - 02/06/07 06:45 PM Re: PETITION: PAIN PATIENTS FOR PROPER TREATMENT
chemsynth chemsynth Threadhead Registered: 11/07/05 Posts: 978 Loc: MA	i didn't see your post, but i know about the conference. i'm not sure it is bad for CPers. i think one interpretation is that there are a number of ways to look at the issues surrounding chronic pain; the NIH tries to take a broader view of the isssue, certainly a broader view than the DEA. since the NIH is filled with scientists, they want data. if anyone doesn't like the current situation, then provide data that demonstrates how opioids have produced benefit. i would suggest the following: create a situation where the scientists of NIH are helpless before the truth; if opioids have helped, say that. if brick-and-mortar doctors suck, say that. but not providing data will certainly NOT help improve things. just something to consider. chemsynth _________________________ If you don't like pain management in the US right now, the URL for the NIH survey is: https://infectiousdisease.tufts-nemc.org/selene
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#449902 - 02/06/07 06:51 PM Re: PETITION: PAIN PATIENTS FOR PROPER TREATMENT
chantal chantal Veteran Registered: 03/02/02 Posts: 682 Loc: troposphere	Quote: Hey Ruggie-- this is a great thing. with what i about to say next, please don't think i'm trying to hijack this post, but.... if anyone wants to weigh in on this issue in an anonymous way, please consider the upcoming NIH survey. many of the issues that suzie identified will be specifically addressed. it is online, anonymous--in fact, we CAN'T know who participates--and all survey answers are pooled, so all data is de-identfied. Everyone please consider participating. chemsynth This survey has been "upcoming" for quite some time now. When exactly will the "upcoming" time finally be? My apologies if I don't sound friendly (I am) but seriously, people will lose interest in it soon. I'm sure most everyone will be more interested in an anonymous survey at this point and it would receive many more participants.
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#449903 - 02/06/07 07:01 PM Re: PETITION: PAIN PATIENTS FOR PROPER TREATMENT
chemsynth chemsynth Threadhead Registered: 11/07/05 Posts: 978 Loc: MA	yeah, i know. the reality is that i started talking about the survey back in the fall in the hope of a long, slow buildup, and things took off FAR faster than i anticipated. we are really close to getting the thing put into web-based format, but that takes time (we have to work out the bugs). so for now, it is still upcoming, and i have to build enthusiasm all over again. sorry about that. Ruggie has seen a preliminary version of it, so she can verify that things have actually moved forward. besides, drawing her back into this thread will allow her to redirect it--it really was not my intent to hijack it. chemsynth _________________________ If you don't like pain management in the US right now, the URL for the NIH survey is: https://infectiousdisease.tufts-nemc.org/selene
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#449904 - 02/06/07 11:37 PM Re: PETITION: PAIN PATIENTS FOR PROPER TREATMENT
LA55 LA55 GRAND Pooh-Bah Registered: 11/10/03 Posts: 3012 Loc: West Coast	bump
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#449905 - 02/07/07 10:32 AM Re: PETITION: PAIN PATIENTS FOR PROPER TREATMENT
sweetness76 sweetness76 Member Registered: 01/30/07 Posts: 123 Loc: On my last nerve	I signed and left a comment on what cracks downs by the DEA and federal government mean to me a mother of 2 small boys. I take pain meds NOT to get high but to function and take care of my little boys and maintain some quality of life. I hope many many people sign because petitions like these really do make a difference when people get behind them. _________________________ "Well-behaved women rarely make history" ~quoted by many women who will do as they d@mn well please!
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#449906 - 02/07/07 01:08 PM Re: PETITION: PAIN PATIENTS FOR PROPER TREATMENT
phil1424 phil1424 Journeyman Registered: 07/20/05 Posts: 94 Loc: USA	I signed this .. thing and wrote a long comment on the bottom of the sheet !!!!!
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#449907 - 02/07/07 03:44 PM Re: PETITION: PAIN PATIENTS FOR PROPER TREATMENT
susieq56 susieq56 Pooh-Bah Registered: 08/29/05 Posts: 1054 Loc: On the move	Bump to get this back to page one _________________________ I thought I was wrong once, but I was wrong....
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#449908 - 02/09/07 09:07 AM Re: PETITION: PAIN PATIENTS FOR PROPER TREATMENT
MARLEY MARLEY GRAND Pooh-Bah Registered: 10/14/05 Posts: 4056 Loc: Vote Obama!	BUMP. Ruggie---You are such a strong person here and I hope everyone appreciates your fight against this ridiculous War. The amount of time you dedicate to helping others along with putting this petition together, etc. blows my mind! Thank You. -MARLEY _________________________ http://www.bushslastday.com/ 01.20.09--Bush's Last Day!!! Please See Link
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#449909 - 02/09/07 10:04 AM Re: PETITION: PAIN PATIENTS FOR PROPER TREATMENT
Ruggie Ruggie GRAND Pooh-Bah Registered: 03/25/04 Posts: 12354 Loc: Right Here	Thanks for the BUMB up, I am in shock that there are only 34 people who signed the petition, makes me wonder. http://www.webpetitions.com/cgi-bin/print_petition.cgi?99500966 _________________________ Takes a Lickin' & Keeps on Tickin'
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#449910 - 02/09/07 10:12 AM Re: PETITION: PAIN PATIENTS FOR PROPER TREATMENT
bkmee1225 bkmee1225 Newbie Registered: 03/22/06 Posts: 27 Loc: Right here	Make that 35 now.
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#449911 - 02/09/07 10:26 AM