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#949362 - 10/26/09 03:34 PM What were your first/earliest signs/symptoms??
taffy Offline
Threadhead

Registered: 01/13/05
Posts: 779
Loc: Southern Chick
Hello all!

It has been a long time since i have posted, and although I have visited the board from time to time I have had my original source of chronic pain (uterine fibroids) surgically removed and have been relatively pain free for about the past 18 months.

Unfortunately, I am in the early stages of diagnosis with suspected fibromyalgia. I am curious, for those of you with this disease, what were your earliest symptoms?

I ask because mine are a bit unusual, more localized to neck, back, hips, and such. Not as generalized I guess as most patients seem to be. This has thrown off my doc, but thank goodness I have a good one that has taken me seriously and continues to try to help me!

I have done some research and found that this can happen, although it is a bit more unusual of a presentation.

I am still learning and would welcome any feedback on initial symptoms, diagnosis, and words of encouragement from those of you with fibro.

Thanks!!!

Taf
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#950083 - 10/27/09 09:09 PM Re: What were your first/earliest signs/symptoms?? [Re: taffy]
Tiades Online   content
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Registered: 09/14/07
Posts: 883
Loc: West Coaster
Pain and fatigue.
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#951240 - 10/29/09 12:13 PM Re: What were your first/earliest signs/symptoms?? [Re: Tiades]
taffy Offline
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Registered: 01/13/05
Posts: 779
Loc: Southern Chick
Thanks, my pain has not been all over my body, but as I described above. Was yours generalized?? We are in the home stretch of diagnosis, so I am just happy to know there is an answer for why I feel so yuck and have these areas of pain

T
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#951827 - 10/30/09 04:20 AM Re: What were your first/earliest signs/symptoms?? [Re: taffy]
Tiades Online   content
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Registered: 09/14/07
Posts: 883
Loc: West Coaster
The pain seemed more in my neck and shoulders, like tension. But when my trigger points were pushed, I had pain I wasn't even aware of in those places.
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Only those not paddling have time to rock the boat.

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#953770 - 11/02/09 02:57 PM Re: What were your first/earliest signs/symptoms?? [Re: Tiades]
taffy Offline
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Registered: 01/13/05
Posts: 779
Loc: Southern Chick
Some of the classic trigger points aren't painful for me. However, the points that are painful are extremely bad. Thanks for your help.....I was beginning to think I was crazy!!!
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If you ain't first, you're last----Ricky Bobby

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#953773 - 11/02/09 03:02 PM Re: What were your first/earliest signs/symptoms?? [Re: taffy]
Tiades Online   content
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Registered: 09/14/07
Posts: 883
Loc: West Coaster
Things vary, you might not necessarily fall into a perfect box. Just makes diagnosing more frustrating.
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Only those not paddling have time to rock the boat.

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#955092 - 11/04/09 12:57 PM Re: What were your first/earliest signs/symptoms?? [Re: Tiades]
taffy Offline
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Registered: 01/13/05
Posts: 779
Loc: Southern Chick
Yes you are so correct! But I think I have a good doc now and I am on a path to treatment!!
Thanks!

T
_________________________
If you ain't first, you're last----Ricky Bobby

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#955094 - 11/04/09 12:59 PM Re: What were your first/earliest signs/symptoms?? [Re: taffy]
Tiades Online   content
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Registered: 09/14/07
Posts: 883
Loc: West Coaster
best of luck to you.
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Only those not paddling have time to rock the boat.

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#955096 - 11/04/09 01:05 PM Re: What were your first/earliest signs/symptoms?? [Re: Tiades]
Flyinghigh Offline
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Registered: 07/18/05
Posts: 568
Loc: Mass-Hole
Ive had it since 2005 and its been a VERY long road, and alot of docs REFUSE to even acknowledge it exisits let alone TREAT it.
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#955099 - 11/04/09 01:09 PM Re: What were your first/earliest signs/symptoms?? [Re: Flyinghigh]
Tiades Online   content
Threadhead

Registered: 09/14/07
Posts: 883
Loc: West Coaster
I know, I was 'lucky' to get diagnosed in college over ten years ago. I'd never even heard of it. I have 1st appt with a Fibromyalgia specialty clinic next week. Took years for a doctor to bring that up.
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