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#938500 - 10/03/09 11:21 AM Anyone with hypersomnia/narcolepsy or daytime sleepiness?
_99 Offline
Journeyman

Registered: 09/21/09
Posts: 77
It's really depressing when you want to sleep constantly...... I suppose it's more normal to be unable to sleep, as far as I can see from the number of threads!

Anyone found a good remedy for it?

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#938505 - 10/03/09 11:27 AM Re: Anyone with hypersomnia/narcolepsy or daytime sleepiness? [Re: _99]
cleo911 Offline
Pooh-Bah

Registered: 08/21/02
Posts: 1325
Loc: Warri, Nigeria
Originally Posted By: _99
It's really depressing when you want to sleep constantly...... I suppose it's more normal to be unable to sleep, as far as I can see from the number of threads!

Anyone found a good remedy for it?

Actually, wanting to sleep constantly is one of the clear signs of depression. So you may want to start a thread on this in the forum for depression.
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#938523 - 10/03/09 12:27 PM Re: Anyone with hypersomnia/narcolepsy or daytime sleepiness? [Re: cleo911]
_99 Offline
Journeyman

Registered: 09/21/09
Posts: 77
Yeah I heard atypical depression can cause symptoms similar to hypersomnia however I'm more interested in non-depression related hypersomnia(ie. the disease primary hypersomnia).

Depression comes and goes, sometimes it gets better, sometimes worse but hypersomnia is something you have since you are born and it never goes away. It cannot be cured like depression, only controlled.

There are meds for it such as as Desoxyn & Dexedrine but in some countries these are not availiable....

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#938558 - 10/03/09 01:21 PM Re: Anyone with hypersomnia/narcolepsy or daytime sleepiness? [Re: _99]
martind Offline
GRAND Pooh-Bah

Registered: 05/01/08
Posts: 1866
While there are indications that idiopathic hypersomnia might be blamed on a genetic origin, there are also many other causes for the disorder that, if properly diagnosed, could be treated appropriately rather than consigning the patient to the "never goes away" category.
For instance, obesity, alcohol and drug abuse, epilepsy, MS, head trauma, CNS injuries, drug withdrawal, and on and on.
Have you self-diagnosed your problem by reading google or have you actually had a proper dx from a physician?
It seems reasonable that trying to identify the cause of the hypersomnia would be a positive step since many of these potentially serious health conditions could be much worse than the hypersomnia itself.
Taking a stimulant to avoid sleep when you might actually be suffering from multiple sclerosis wouldn't be a very smart idea.

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#966866 - Yesterday at 09:26 PM Re: Anyone with hypersomnia/narcolepsy or daytime sleepiness? [Re: martind]
Berg4 Offline
Newbie

Registered: 08/03/08
Posts: 30
Loc: St. Louis
I have narcolepsy NOS. If you are suffering from hypersomnolence, I would definitely have your doctor refer you preferably to a neurologist for evaluation and sleep studies. I can not convey how happy I was to hear the results of my MSLT sleep study. The neurologist told me, and I have it in writing, "...Your MSLT was abnormal because your mean MSLT score was in the severely pathological range..."
I was so relieved that after years of falling asleep spontaneously, sometimes in dangerous situations, I had a neurologist with objective test results saying it was real, I really did have a problem maintaining wakefulness. From there, treatment began with a number of medications that while not completely wiping out the problems associated with narcolepsy, they have made a huge impact and improved the quality of my life exponentially.
Unfortunately I have other physical problems that now are eclipsing narcolepsy.
Back to my point, have sleep studies done, because if you have a disorder of primary hypersomnia, there are medications that can make a great difference in improving your life. Your hypersomnia could be secondary to disorders of the thyroid, pituitary, adrenal glands, or other endocrine disorder, or possibly a CNS disregulation causing orthostatic hypotension. There are other possibilities, and having sleep studies done is a good starting point to finding out the cause and getting effective treatment.
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