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#721072 - 06/28/08 09:27 PM Re: Which medication gives you the most relief ***** [Re: JokerOwling]
findanewway Offline
Newbie

Registered: 05/10/08
Posts: 30
JokerOwling I am sorry I missed your question. Unfortunately the comment about my PCP was in regards to the multitude of health issues that I have not just fibro. She's always been willing to schedule tests that the other specialists should've done(long story ughh), try new drugs, call other doctors involved to help me out, even giving me loads of samples when my insurance company is being a pain. It is still a hit and miss as far as pain control. But I like the fact that she is willing to walk that road with me. I'm currently deciding whether or not to try anti-parkinson drugs for fibro. Just haven't made up my mind yet. There are some interesting drugs in clinical trials but I haven't found a source even though they are legal in other coutries. If I come up with something, I'll be sure to share.

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#721526 - 06/30/08 01:23 AM Re: Which medication gives you the most relief [Re: findanewway]
JokerOwling Offline
GRAND Pooh-Bah

Registered: 07/14/07
Posts: 1971
Loc: here at the moment
Thanks for the reply findanewway.
Its good to hear your dr will work with you to some degree.
Definitely keep us updated,especially if you try anything unusual.One of my dr's likes to hear about 'off label' uses and their results.

Monsterita,sorry to hear you have been diagnosed with FM.Maybe you can add to the growing number of people trying to find some answers.And please share also if you do find any.
Taking opiates will usually help in the short term,but may make things worse in the long term.Its a tricky situation.I don't think there is any question they help with the pain though.
_________________________
I think the most un-American thing you can say is, 'You can't say that.' -Garrison Keillor

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#721953 - 06/30/08 08:30 PM Re: Which medication gives you the most relief [Re: JokerOwling]
jmwm Offline
Journeyman

Registered: 04/16/08
Posts: 68
I had two doctors diagnose me with Fibro a few years ago. That was only by ruling out several other things (plus running up one heck of a bill on tests).

Is there anything new to diagnose this with now? I haven't kept up with it too much for a while now.

Thanks

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#721970 - 06/30/08 08:52 PM Re: Which medication gives you the most relief [Re: jmwm]
neofate Offline
Pooh-Bah

Registered: 10/30/02
Posts: 1393
Loc: Southern, US
Nothing specific really -- Here is what is used to diagnose Fibromyalgia.

Widespread pain across the body for at least three months.

At least 11 of the 18 specific tender 'points'. These points, if you are not familiar are around the neck, shoulder, chest, hip, knee and elbow region. The doctor will apply pressure with his finger. There are many other pressure points that exist but are not used for diagnosis.

More recent studies have negated the absolute 'must' have of the 11 of 18 tender points. Instead general widespread pain alone is enough.. if the pain is associated with some of the following symptoms:

1) Fatigue
2) Irritable Bowel
3) Sleep Disorders
4) Chronic Headaches
5) Jaw Pain
6) Cognitive or Memory impairment
7) Post-exertional Malaise and muscle pain -- (After you exert yourself paying for it more than normal)

8) Morning stiffness -- achy and stiff
9) Menstrual cramping (this one boggles me a little)
10) Numbness and tingling sensations
11) Dizziness or Lightheadedness (or both)
12) Skin and Chemical Sensitivities

Maybe that helps -- but there is still no clear cut 'blood test' or any other culture that will define the disease. It is SLOWLY becoming more accepted, instead of being just a last resort wastebasket diagnosis.
_________________________
-/\/eofate

"Efforts and courage are not enough, without purpose and direction."

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#721988 - 06/30/08 09:29 PM Re: Which medication gives you the most relief [Re: neofate]
jmwm Offline
Journeyman

Registered: 04/16/08
Posts: 68
I showed and still have all of those symptoms, but I also have a few other things damaged (bone/nerve/Meniere's). My doctors give me something for pain, to sleep, dizzyness, nausea, IBS, use Bio-Freeze by the gallon, etc., etc., etc.

I have the tender points and mostly it just a hurt all over daily. I feel like my Grandmother when she use to say "I hurt from the tips of my toes to the top of my head".

Is it hereditary, or do they know? I just have mainly always contributed it to all the other cr@p going on within me.

So the only way they still diagnose it is to rule everything else out?

I just thought if there was a new test to diagnose it I'd like to take it to find out for sure. Guess I'll save myself some money for the meds until they come up with something.

Thanks for the info.

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#721999 - 06/30/08 10:05 PM Re: Which medication gives you the most relief [Re: jmwm]
neofate Offline
Pooh-Bah

Registered: 10/30/02
Posts: 1393
Loc: Southern, US
 Originally Posted By: jmwm
I showed and still have all of those symptoms, but I also have a few other things damaged (bone/nerve/Meniere's). My doctors give me something for pain, to sleep, dizzyness, nausea, IBS, use Bio-Freeze by the gallon, etc., etc., etc.


Unfortunately , at this time,.. that is the best treatment you can do besides taking it easy and getting the best sleep you can. They are working on new experimental drugs and uses of other drugs for the disease.. so there is promise in the future.

 Quote:

I have the tender points and mostly it just a hurt all over daily. I feel like my Grandmother when she use to say "I hurt from the tips of my toes to the top of my head".


I know the saying, and know how you feel -- but fortunately I do not have the disease. But I try to become intimate with any disease of such a mysterious magnitude.

 Quote:

Is it hereditary, or do they know? I just have mainly always contributed it to all the other cr@p going on within me.


It is both.. hereditary and non. There have been extensive (or so I am told) studies done in the United States that come up with the following conclusions:

If one's parents have fibro their offspring has a ratio of 1 in 4 , or 25% chance of developing it. This is , obviously, hereditary.

However in equally as many patients/cases it has been deemed to be caused by largely unknown conditions but NOT genetical inheritance. They can say what doesn't cause it, but not what does... yet.

 Quote:


So the only way they still diagnose it is to rule everything else out?


Generally speaking.. yes, for now.

 Quote:

I just thought if there was a new test to diagnose it I'd like to take it to find out for sure. Guess I'll save myself some money for the meds until they come up with something.

Thanks for the info.


It sounds as if you don't need any further testing to diagnose. If you have all of the symptoms and the tenderness -- you have Fibromyalgia. Though I do understand wanting a more definite diagnosis. I think once they do figure out a way to definitively test for it .. that very test will change the stigma/view attached to the disease and finally give it and ultimately its patients credibility.

So yes, save your money.. Keep on your regimen, and just keep reading on the internet about what little things you can do to help your symptoms. A good site is:

http://www.fibromyalgiasyndrome.co.uk/LivingWithItCategory.html

Yes, it is based in the U.K. but I find it a valuable source of information, and an easy read.

Take care,
_________________________
-/\/eofate

"Efforts and courage are not enough, without purpose and direction."

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#722193 - 07/01/08 12:50 PM Re: Which medication gives you the most relief [Re: neofate]
JRoc Offline
Newbie

Registered: 06/24/08
Posts: 43
"I even had black eyes" I read this quote from earlier and was interested if having the dark rings around eyes could be indicative of FM. A woman I work with has these and we're trying to figure out a cause. (She sleeps well at night and naps during the day. Has some pain in the back but from disc issues so we think. Also has some swelling and stiffness in hand and foot)

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#722216 - 07/01/08 01:19 PM Re: Which medication gives you the most relief [Re: JRoc]
neofate Offline
Pooh-Bah

Registered: 10/30/02
Posts: 1393
Loc: Southern, US
She would be very aware of 'something is wrong with me' if she had FM. The dark rings on this woman I imagine are underneath her eyes, not above?

Usually dark rings that are constant and unexplainable are from the blood flow underneath the skin. Almost all dark 'rings' are caused from blood flow exposure.

This exposure is from thin skin, hereditary dark circles, etc.

It can worsen when the blood vessels are dilated and thus the blood causes a more 'bluish/black' tint underneath the thin sometimes pale skin under the eyes.

When one has lack of sleep,.. (not this case).. the skin becomes pale and produces the color from the blood flow under the pale skin.

Occaisonally the melanin in the skin can cause it.

As for remedies -- I will quote a fairly extensive list you might want to get her to try:

 Quote:


Natural Remedies

1. Tea Bag Treatment: Try applying a cold compress of rosemary tea to increase circulation, which helps reduce swelling around the eyes.

Make tea by bringing a half-cup of fresh rosemary and a quart of water to a boil.

Steep for 20 minutes, then strain and chill.

Soak a washcloth in the tea, ring out extra liquid anal place over eyes for 15 to 20 minutes, once a day, as needed.

2. Acupressure: Another circulation-boosting treatment is acupressure.

This is an easy exercise that you can also do every day.

Close your eyes and gently press your ring finger underneath one eye, moving from the inside corner to the outside corner.

Do this 10 to 15 times.

Then repeat on the other eye.

3. Cold compress: Close your eyes and cover them with a cold washcloth for about five minutes.

Repeat several times throughout the day.

That will help constrict your blood vessels, minimizing darkness, and it may help minimize tissue swelling and eliminate some of the darkness.

4. Moisturizer: To minimize the appearance of bags, plump up skin with moisturizer, one that contains vitamin C, an antioxidant that protects skin cells from damage and supports collagen production; licorice (or fennel) extract, an anti-inflammatory; and stabilized oxygen, a form of hydrogen peroxide that promotes circulation.

5. Diet: Eat a whole-foods, plant-based diet, drink plenty of water (eight 8-ounce glasses daily), and avoiding alcohol, coffee, tea and caffeinated soft drinks also go a long way in preventing bags, circles and wrinkles.

6. Spread on the sunscreen: Use a sunscreen especially made for the face with a sun protection factor (SPF) of at least 15, but preferably 20, "all day every day," to keep the sun's rays from darkening the skin under your eyes.

7. Eight hours of sleep: is a must for all of us, especially for people having dark circles under the eyes.

8. Freeze some parsley in ice cubes: Use the parsley cubes instead of eye creams to diminish dark circles and puffiness.

Parsley is packed with chlorophyll which helps fade darkness, while the ice cubes reduce the swelling.

9. Potato/Cucumber combinations are helpful: Close your eyes and cover eyelids with slices of raw potato or cucumber for 15-20 minutes.

Wash with warm water and apply a cream.

Grate a cucumber, squeeze to take out its juice and refrigerate.

Make a mixture of lemon juice, lanolin cream and cucumber juice and apply around the eye for 10-15 minutes.

Dip some cotton in a 1:1 mixture of potato and cucumber juices.

Put the cotton on your eyelids and keep for 20 minutes. Wash your eyes with cold water.

10. Lemon/Tomato combinations are helpful: Apply a mixture of lemon and tomato juice(equal parts) on the black circles 2 times a day.

Make a paste out of the following: 1 tsp. tomato juice, 1/2 tsp. lemon juice,a pinch of turmeric powder, and1 tsp. of flour.

Apply around eyes. Leave on for 10 minutes before rinsing.

11. Apply a paste of turmeric powder with pineapple juice for dark circles under the eyes.

12. Apply crushed mint around the eye.

13. Massage with almond oil: under and around eyes at bed time daily for 2 weeks and see the improvement.

Almond helps to remove dark circles, and is an excellent "skin food".

14. Vitamin E: Rub the area with a powdered Vitamin E capsule and wipe off with a mixture of honey and egg white.

15. Put hot and cold cloths: alternatively under eyes for 10 minutes.

Then apply some almond oil on the dark surface before going to bed.

16. Smooth Puffy Eyes with Egg White: Astringent egg white tightens your pores and reduces puffiness.

Additionally, its high concentration of the B vitamins promotes circulation and reduces inflammation.

Check with the farm that produces your eggs to make sure they have been tested for Salmonella, a bacteria that can cause serious infections, cautions Annie Berthold-Bond, the Rhinebeck, N.Y.-based author of Better Basics for the Home (Three Rivers Press, 1999).

Use your fingers to dab 1/2 teaspoon of one raw egg white onto the clean, dry skin around your eyes, avoiding your eyes themselves.

Leave it on until it dries, about 15 minutes.

Then rinse the area well with warm water and wash your hands with soap and water.



Hope that helps.
_________________________
-/\/eofate

"Efforts and courage are not enough, without purpose and direction."

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#722252 - 07/01/08 02:16 PM Re: Which medication gives you the most relief [Re: neofate]
JRoc Offline
Newbie

Registered: 06/24/08
Posts: 43
Neofate--thanks. I will print that out and give it to her. Heredity is probably her deal. Thank you so much

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#722259 - 07/01/08 02:29 PM Re: Which medication gives you the most relief [Re: JRoc]
neofate Offline
Pooh-Bah

Registered: 10/30/02
Posts: 1393
Loc: Southern, US
Most welcome, maybe one of those concoctions will be of some use .. \:\)
_________________________
-/\/eofate

"Efforts and courage are not enough, without purpose and direction."

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#722260 - 07/01/08 02:30 PM Re: Which medication gives you the most relief [Re: JRoc]
Bluefairy Offline
Pooh-Bah

Registered: 06/27/07
Posts: 1477
Loc: Deep in Dixie
 Originally Posted By: JRoc
Neofate--thanks. I will print that out and give it to her. Heredity is probably her deal. Thank you so much


Benefit cosmetics makes a good concealer, I think it is Boing, or something similar? I use it not only for the dark circles, but also to cover up my butterfly rash.

As far as what meds give me the best relief, I wish I had an answer. I have found it is a combo thing, always.
_________________________
Stubbornness does have its helpful features. You always know what you are going to be thinking tomorrow. ~Glen Beaman

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#725731 - 07/09/08 06:55 AM Re: Which medication gives you the most relief [Re: JRoc]
JokerOwling Offline
GRAND Pooh-Bah

Registered: 07/14/07
Posts: 1971
Loc: here at the moment
 Originally Posted By: JRoc
"I even had black eyes" I read this quote from earlier and was interested if having the dark rings around eyes could be indicative of FM.

I think the black eyes quote was from one of my posts.I was referring to a reaction I had after trying guafenisen,which is suppose to be part of a therapy for FM.
I just meant that it made me so sick that I even had black eyes.I don't think black circles under the eyes has anything to do with FM.
_________________________
I think the most un-American thing you can say is, 'You can't say that.' -Garrison Keillor

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#744632 - 08/10/08 07:23 AM Re: Which medication gives you the most relief [Re: JokerOwling]
JokerOwling Offline
GRAND Pooh-Bah

Registered: 07/14/07
Posts: 1971
Loc: here at the moment
I put this in the other FM thread but thought I would put it here as well.
I've been taking:
1,3-dimethylamylamine
Phenethylamine(PEA)
Hordenine
Sulbutiamine


for a couple of weeks now,with a day off here and there,and I have to say I'm very suprised at how well the above combo works for fibro fatigue,or any type of fatigue for that matter.I also add some DL-phenylalanine and/or L-dopa(mucuna pruriens 95%extract) and tyrosine plus others if I feel like it.
I also take a number of medications and there has been no interactions.
The best part of the above combo is there are no major side-effects(jitters,heart racing etc).They also act as a minor anti-depressant and memory enhancer.

I was actually well suprised at how 1,3-dimethylamylamine works as a stimulant.It's great for fat burning as well.
Sulbutiamine is also great for fibro-fog.

If anyone else tries them long term,vit B12,essential fatty acids(EFAs-like Flaxseed Oil) and plenty of anti-oxidants are a good idea to take as well.
_________________________
I think the most un-American thing you can say is, 'You can't say that.' -Garrison Keillor

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#753080 - 08/25/08 12:37 PM Re: Which medication gives you the most relief [Re: monsterita]
vba195 Offline
Newbie

Registered: 08/03/07
Posts: 46
I have been prescribed Lyrica for nerve pain in my ankle. After reading so many negative remarks and being scared to take it to begin with, I am not going to get it filled. My dr said Lyrica would calm down the nerve being pressed on, and this is to try before going under the knife for the second time. I am so sad about this. I am going to stand my ground and tell him I will not take it. I wonder what he will say. Is it fair to pay full price for an appointment with the Ortho Doc, and only to be seen by a Dr Assistant? I wish I had a more understanding Doc. My foot has been tingling and very painful almost constantly for 2 years now. I had a tarsal tunnel release surgery done in December. I saw the Asst last week and was given the Lyrica script. Now I have to wait another 4 weeks for nothing. I am just sad and hurting.

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#753186 - 08/25/08 03:07 PM Re: Which medication gives you the most relief [Re: vba195]
MarkhW Offline
Member

Registered: 04/20/06
Posts: 105
Lyrica is a life saver for some people. It helps about 70% of the people who try it to one extent or another. Of course, only a few percent get really great results. For about 30% of people, it doesn't help at all.

Your doctor may be reluctant to try other approaches with you if you won't even give it a try.

I tried it, and couldn't tolerate the side effects, but it did help my pain a lot -- like nothing else, not even morphine.

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#753205 - 08/25/08 03:43 PM Re: Which medication gives you the most relief [Re: MarkhW]
Bluefairy Offline
Pooh-Bah

Registered: 06/27/07
Posts: 1477
Loc: Deep in Dixie
VBA, why are you afraid to take it?

I know many people who have taken it whom it has helped, and none of them have had any unpleasant side effects.

I tried it for quite some time, and while it did not help a whole lot, it did not hurt anything either.
_________________________
Stubbornness does have its helpful features. You always know what you are going to be thinking tomorrow. ~Glen Beaman

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#753284 - 08/25/08 05:42 PM Re: Which medication gives you the most relief [Re: Bluefairy]
vba195 Offline
Newbie

Registered: 08/03/07
Posts: 46
Of the people that had posted their side effects here and other places on the web, most people do not like it. I guess, in my mind I had decided against it. I am so afraid of looking like the Michelin man, and retaining tons of water. I feel bad enough as it is.
**Please reply and tell me if I should try it-all who read this*****
Thank you very much!
vba

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#754740 - 08/27/08 04:50 PM Re: Which medication gives you the most relief [Re: vba195]
pillar Offline
GRAND Pooh-Bah

Registered: 11/07/06
Posts: 1902
Loc: The Doors of Perception
I don't have FM, but my Mother does and she wouldn't go a day without taking her Lyrica. I have taken it as a potential CP med and I was surprised at how effective it was. If I could afford it I would take it for CP.

My Mom is on:
EffexorXR 225mg - depression
Fentanyl 100mcg - pain
Zanaflex 6-8mgs - muscle tension
Mobic 15mg - inflammation
Klonopin 2mg - anxiety
Lyrica is 150mg I believe - FM pain
Myrapex - RLS? Don't know the dose
and some old drug that she breaks into 1/4 and lets it melt on her tongue- for sleep. Whatever it is she had to stop taking Ambien and Elavil before starting it.

She has good days and very bad days. The EffexorXR, Fentanyl, Lyrica and Mobic she takes religiously. The others not so much, they make her tired and so she adjusts time and dosage daily. Right now she seems to be doing better.

Take the Lyrica vba195. I was scared too and it's nothing like the horror stories.


Edited by pillar (08/27/08 04:54 PM)
_________________________
"God deliver us from such criminal imbecility."

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#754852 - 08/27/08 07:21 PM Re: Which medication gives you the most relief [Re: pillar]
jehza1 Offline
Veteran

Registered: 02/28/08
Posts: 494
Loc: Southwest US
I was recently prescribed Lyrica for neuropathy and although it helped with the burning sensation that I sometimes get in my hands and scalp, the subjective effects were too much for me. I felt like I had smoked astro turf and was constantly bumping into things and generally felt out of it for about six hours.

My mom takes it everyday with no problems, however and it has helped her a great deal.
_________________________
The average pencil is seven inches long, with just a half-inch eraser - in case you thought optimism was dead.

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#754875 - 08/27/08 07:55 PM Re: Which medication gives you the most relief [Re: jehza1]
pillar Offline
GRAND Pooh-Bah

Registered: 11/07/06
Posts: 1902
Loc: The Doors of Perception
That's interesting. Since my Mom and I see the same PCP I was given 2 months of the Lyrica samples to try, by him, because of how well my Mom tolerated it. However my Mom and I have very peculiar metabolisms, Klonopin and Ambien speed us up while some stimulants make us zombies. So I guess in every sense of the term I am truly a Momma's Boy \:\/ .

I just hope the Type II Diabetes, FM, TIA's and artrial fibrillations don't follow. I already have her neck and back problems but I don't smoke and take slightly better care of myself.
_________________________
"God deliver us from such criminal imbecility."

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#756505 - 08/30/08 12:08 PM Re: Which medication gives you the most relief [Re: pillar]
Bluefairy Offline
Pooh-Bah

Registered: 06/27/07
Posts: 1477
Loc: Deep in Dixie
Lyrica did not make me retain water or feel like a zombie, and has not done that to anyone I know who uses it.

People are most likely to post about a drug if they have a negative experience with it, or if they have a miracle experience instead. People who have moderate to small relief or not not going to feel strongly enough about it to post, as a general rule. By the same token those with negative issues are more likely to post than those with no adverse affects.

Kinda like if someone has a bad cs experience, they tell everyone, good cs they might tell a person or two. That phenom is really obvious here in our OCS threads, when all is smooth their are few posts, trouble starts and you have pages a day.

I think you would be better off trying it with an open mind and then when it does not work they cannot cross you off as uncooperative.
_________________________
Stubbornness does have its helpful features. You always know what you are going to be thinking tomorrow. ~Glen Beaman

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#757784 - 09/01/08 01:50 PM Re: Which medication gives you the most relief [Re: Bluefairy]
pillar Offline
GRAND Pooh-Bah

Registered: 11/07/06
Posts: 1902
Loc: The Doors of Perception
I loved the Lyrica. My Dr. ran out of samples and I can't afford it with no ins., so I switched to Neurontin, which is just OK.
_________________________
"God deliver us from such criminal imbecility."

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#758056 - 09/02/08 12:53 AM Re: Which medication gives you the most relief [Re: pillar]
Code21 Offline
Veteran

Registered: 07/05/07
Posts: 652
Loc: K-Pin Highway
Wow Pillar, your poor Mom. Is all of that for FM? Sorry if I'm being too personal. I've had a lot of those medications in the past. Just not the fentanyl - does she get that for her FM or something else? I've heard of Dr's giving the Fentanyl for FM before... I really hope my pain never gets that bad. \:\(

Mirapex is for RLS - I tried it once and it gave me horrible headaches. I took Sinemet(sp?) for a while as well, until I started having real bad, weird nightmares. My RLS, however, has seemed to fade away since I started doing yoga and really stretching my legs. In fact, this is the first time in a long while I've thought about my RLS! *knocking on wood now*
_________________________
Ahh Klonopin, sweet nectar of the gods!

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#758076 - 09/02/08 04:04 AM Re: Which medication gives you the most relief [Re: vba195]
bacchus1 Offline
Newbie

Registered: 02/28/07
Posts: 31
Early in Feb. 2007. I started having terrible sciatic nerve pain. As the weeks went by, it got so bad I could not walk, sit, stand in one spot etc. I read about sciatic problems and read in some instances it would pass with time. By mid March 2007, I had to see a doctor as I just could not take the pain anymore...an MRI turned up an L-5,S-1 problem which eventually led to surgery in May of 2008. Anyway, during this time I was given 100mg Lyrica 3 times daily. It is a wonder drug for me. I mean it completely took the nerve pain away, with no side effects at all. After the surgery, they lowered the doseage to 100mg twice a day, along with the hydro and oxy. To this day if I forget to take the Lyrica in the morning or at night...I defineatly feel the nerve pain. It works where the opiates do not for nerve pain.
I hope this helps. Have a great day.

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#763833 - 09/12/08 12:30 AM Re: Which medication gives you the most relief [Re: bacchus1]
Code21 Offline
Veteran

Registered: 07/05/07
Posts: 652
Loc: K-Pin Highway
I am so happy to have a new script for lidoderm patches for my nerve pain on my back. I completely forget about the pain when they are on there.
_________________________
Ahh Klonopin, sweet nectar of the gods!

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#763987 - 09/12/08 09:30 AM Re: Which medication gives you the most relief [Re: bacchus1]
Ballerina59 Offline

Pooh-Bah

Registered: 04/19/08
Posts: 1461
Thanks all of you for the great suggestions on meds re: nerve pain; am taking Neurontin (generic) and it does help somewhat. Was given a script for Lyrica awhile back, but after taking about a week, it didn't seem to help. Maybe I didn't give it long enough. Considering trying it again.

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#770622 - 09/22/08 02:05 PM Re: Which medication gives you the most relief [Re: Ballerina59]
Code21 Offline
Veteran

Registered: 07/05/07
Posts: 652
Loc: K-Pin Highway
My fibro is worse over the thin bony parts of my body (I'm sure this is the way it is for most of us) and the lidoderm patches are SOOO good for that! I had some real nasty pain on my shoulder blade a few nights ago, put one of those on and it was gone. I was amazed. They really do work, but I think best on those thin bony areas.
_________________________
Ahh Klonopin, sweet nectar of the gods!

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#773856 - 09/27/08 02:18 AM Re: Which medication gives you the most relief [Re: Code21]
sarahte Offline
Pooh-Bah

Registered: 09/04/08
Posts: 1338
Loc: Driving the LOVE BUS
medications? nothing actually worked' for me. maybe wellbutrin helped for a few weeks but soon failed, then I had to go off them -they were making me depressed and horribly anxious.

I can say what doesnt work: asprin, ibuprophen, tylenol, Tramadol, even darvecett isnt working.

The only thing that worked is what I learned by accident \:o

after elective surgery I had some kind of time release morphine, it was the first time I felt 'ok' all around in the previous 8 years of Fibro.

Then after my appendix was taken out - I was given percacet'. Again, I felt 'ok' with no pain of fibro ' for all the 12 years of fibro-pain.

now recently Ive been in an extreme flare'''' that wont go away. a dear friend of mine gave me just a few oxy. YES.. I felt OK, not dizzy not euphoric..but Capable. that is my dilemma here, no doc will give me a script for an opiate, not even a low dose closely monitored test.

so.. its still my MED of choice, whether I get it or not
_________________________
...cast your dancing spell my way~ i promise to go under it

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#773858 - 09/27/08 02:22 AM Re: Which medication gives you the most relief [Re: sarahte]
sarahte Offline
Pooh-Bah

Registered: 09/04/08
Posts: 1338
Loc: Driving the LOVE BUS
oops, was going to ask:

Code21 what are these 'lidoderm patches' sounds like something better than the TENS unit I try on my legs.
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#776215 - 09/30/08 07:43 PM Re: Which medication gives you the most relief [Re: Code21]
pillar Offline
GRAND Pooh-Bah

Registered: 11/07/06
Posts: 1902
Loc: The Doors of Perception
 Originally Posted By: Code21
Wow Pillar, your poor Mom. Is all of that for FM? Sorry if I'm being too personal. I've had a lot of those medications in the past. Just not the fentanyl - does she get that for her FM or something else? I've heard of Dr's giving the Fentanyl for FM before... I really hope my pain never gets that bad. \:\(

Mirapex is for RLS - I tried it once and it gave me horrible headaches. I took Sinemet(sp?) for a while as well, until I started having real bad, weird nightmares. My RLS, however, has seemed to fade away since I started doing yoga and really stretching my legs. In fact, this is the first time in a long while I've thought about my RLS! *knocking on wood now*



No she has a heart condition, TIA's, diabetes and arthritis. The Fentanyl is more for her headaches caused by several herniated discs, in her neck. She takes Mobic and sometimes prednisone for the FM. Our doc put her on Ritalin, for energy today and I'm wondering if Provigil wouldn't have been a better choice? She has high-blood pressure already(takes meds for it) and a serious heart condition plus the mini strokes. Won't Ritalin raise her BP and put her at greater risk for stroke and heart attack then Provigil would? She has excellent BCBS ins., so payment isn't a problem. I just really question the use of Ritalin as a stimulant, when her problem is poor sleep schedule/routine.

Any thoughts or comparisons? She's only 55 and I would be crushed if I lost my Mom. I worry about her daily and try my best to keep her stress level down. I take her to most doc appointments and check in every 2-3 days to see if she needs anything. Her husband thinks there's nothing wrong with her but the doctors and the meds. He had the audacity to come home 2 days ago and [censored] at her for not sweeping the floor. When she explained she was in severe pain he told her to do it sitting in a chair!! I want to shove that chair so far up his azzhole he'll be tasting casters for months!

I've tried to get her to come on here or join a support group for FM and chronic pain but she's too embarrassed. This prick wants her to grin and bear sex, which causes her extreme pain and bleeding, just to satisfy his needs. Jerk-Off or get the [censored] out of my Mom's life if he feels that way, you know! I've fought him once over [censored] like this and have court in 2 weeks because of it. But I won't let him push my Mom around and attempt to make her feel like less of a woman because of a disease, she can't control. I don't really know how to help her any more than I already am, but I need to be doing more for her.
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