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#721988 - 06/30/08 09:29 PM
Re: Which medication gives you the most relief
[Re: neofate]
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Journeyman
Registered: 04/16/08
Posts: 68
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I showed and still have all of those symptoms, but I also have a few other things damaged (bone/nerve/Meniere's). My doctors give me something for pain, to sleep, dizzyness, nausea, IBS, use Bio-Freeze by the gallon, etc., etc., etc.
I have the tender points and mostly it just a hurt all over daily. I feel like my Grandmother when she use to say "I hurt from the tips of my toes to the top of my head".
Is it hereditary, or do they know? I just have mainly always contributed it to all the other cr@p going on within me.
So the only way they still diagnose it is to rule everything else out?
I just thought if there was a new test to diagnose it I'd like to take it to find out for sure. Guess I'll save myself some money for the meds until they come up with something.
Thanks for the info.
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#721999 - 06/30/08 10:05 PM
Re: Which medication gives you the most relief
[Re: jmwm]
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Pooh-Bah
Registered: 10/30/02
Posts: 1393
Loc: Southern, US
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I showed and still have all of those symptoms, but I also have a few other things damaged (bone/nerve/Meniere's). My doctors give me something for pain, to sleep, dizzyness, nausea, IBS, use Bio-Freeze by the gallon, etc., etc., etc.
Unfortunately , at this time,.. that is the best treatment you can do besides taking it easy and getting the best sleep you can. They are working on new experimental drugs and uses of other drugs for the disease.. so there is promise in the future. I have the tender points and mostly it just a hurt all over daily. I feel like my Grandmother when she use to say "I hurt from the tips of my toes to the top of my head".
I know the saying, and know how you feel -- but fortunately I do not have the disease. But I try to become intimate with any disease of such a mysterious magnitude. Is it hereditary, or do they know? I just have mainly always contributed it to all the other cr@p going on within me.
It is both.. hereditary and non. There have been extensive (or so I am told) studies done in the United States that come up with the following conclusions: If one's parents have fibro their offspring has a ratio of 1 in 4 , or 25% chance of developing it. This is , obviously, hereditary. However in equally as many patients/cases it has been deemed to be caused by largely unknown conditions but NOT genetical inheritance. They can say what doesn't cause it, but not what does... yet.
So the only way they still diagnose it is to rule everything else out?
Generally speaking.. yes, for now. I just thought if there was a new test to diagnose it I'd like to take it to find out for sure. Guess I'll save myself some money for the meds until they come up with something.
Thanks for the info.
It sounds as if you don't need any further testing to diagnose. If you have all of the symptoms and the tenderness -- you have Fibromyalgia. Though I do understand wanting a more definite diagnosis. I think once they do figure out a way to definitively test for it .. that very test will change the stigma/view attached to the disease and finally give it and ultimately its patients credibility. So yes, save your money.. Keep on your regimen, and just keep reading on the internet about what little things you can do to help your symptoms. A good site is: http://www.fibromyalgiasyndrome.co.uk/LivingWithItCategory.htmlYes, it is based in the U.K. but I find it a valuable source of information, and an easy read. Take care,
_________________________
-/\/eofate
"Efforts and courage are not enough, without purpose and direction."
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#722216 - 07/01/08 01:19 PM
Re: Which medication gives you the most relief
[Re: JRoc]
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Pooh-Bah
Registered: 10/30/02
Posts: 1393
Loc: Southern, US
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She would be very aware of 'something is wrong with me' if she had FM. The dark rings on this woman I imagine are underneath her eyes, not above? Usually dark rings that are constant and unexplainable are from the blood flow underneath the skin. Almost all dark 'rings' are caused from blood flow exposure. This exposure is from thin skin, hereditary dark circles, etc. It can worsen when the blood vessels are dilated and thus the blood causes a more 'bluish/black' tint underneath the thin sometimes pale skin under the eyes. When one has lack of sleep,.. (not this case).. the skin becomes pale and produces the color from the blood flow under the pale skin. Occaisonally the melanin in the skin can cause it. As for remedies -- I will quote a fairly extensive list you might want to get her to try:
Natural Remedies
1. Tea Bag Treatment: Try applying a cold compress of rosemary tea to increase circulation, which helps reduce swelling around the eyes.
Make tea by bringing a half-cup of fresh rosemary and a quart of water to a boil.
Steep for 20 minutes, then strain and chill.
Soak a washcloth in the tea, ring out extra liquid anal place over eyes for 15 to 20 minutes, once a day, as needed.
2. Acupressure: Another circulation-boosting treatment is acupressure.
This is an easy exercise that you can also do every day.
Close your eyes and gently press your ring finger underneath one eye, moving from the inside corner to the outside corner.
Do this 10 to 15 times.
Then repeat on the other eye.
3. Cold compress: Close your eyes and cover them with a cold washcloth for about five minutes.
Repeat several times throughout the day.
That will help constrict your blood vessels, minimizing darkness, and it may help minimize tissue swelling and eliminate some of the darkness.
4. Moisturizer: To minimize the appearance of bags, plump up skin with moisturizer, one that contains vitamin C, an antioxidant that protects skin cells from damage and supports collagen production; licorice (or fennel) extract, an anti-inflammatory; and stabilized oxygen, a form of hydrogen peroxide that promotes circulation.
5. Diet: Eat a whole-foods, plant-based diet, drink plenty of water (eight 8-ounce glasses daily), and avoiding alcohol, coffee, tea and caffeinated soft drinks also go a long way in preventing bags, circles and wrinkles.
6. Spread on the sunscreen: Use a sunscreen especially made for the face with a sun protection factor (SPF) of at least 15, but preferably 20, "all day every day," to keep the sun's rays from darkening the skin under your eyes.
7. Eight hours of sleep: is a must for all of us, especially for people having dark circles under the eyes.
8. Freeze some parsley in ice cubes: Use the parsley cubes instead of eye creams to diminish dark circles and puffiness.
Parsley is packed with chlorophyll which helps fade darkness, while the ice cubes reduce the swelling.
9. Potato/Cucumber combinations are helpful: Close your eyes and cover eyelids with slices of raw potato or cucumber for 15-20 minutes.
Wash with warm water and apply a cream.
Grate a cucumber, squeeze to take out its juice and refrigerate.
Make a mixture of lemon juice, lanolin cream and cucumber juice and apply around the eye for 10-15 minutes.
Dip some cotton in a 1:1 mixture of potato and cucumber juices.
Put the cotton on your eyelids and keep for 20 minutes. Wash your eyes with cold water.
10. Lemon/Tomato combinations are helpful: Apply a mixture of lemon and tomato juice(equal parts) on the black circles 2 times a day.
Make a paste out of the following: 1 tsp. tomato juice, 1/2 tsp. lemon juice,a pinch of turmeric powder, and1 tsp. of flour.
Apply around eyes. Leave on for 10 minutes before rinsing.
11. Apply a paste of turmeric powder with pineapple juice for dark circles under the eyes.
12. Apply crushed mint around the eye.
13. Massage with almond oil: under and around eyes at bed time daily for 2 weeks and see the improvement.
Almond helps to remove dark circles, and is an excellent "skin food".
14. Vitamin E: Rub the area with a powdered Vitamin E capsule and wipe off with a mixture of honey and egg white.
15. Put hot and cold cloths: alternatively under eyes for 10 minutes.
Then apply some almond oil on the dark surface before going to bed.
16. Smooth Puffy Eyes with Egg White: Astringent egg white tightens your pores and reduces puffiness.
Additionally, its high concentration of the B vitamins promotes circulation and reduces inflammation.
Check with the farm that produces your eggs to make sure they have been tested for Salmonella, a bacteria that can cause serious infections, cautions Annie Berthold-Bond, the Rhinebeck, N.Y.-based author of Better Basics for the Home (Three Rivers Press, 1999).
Use your fingers to dab 1/2 teaspoon of one raw egg white onto the clean, dry skin around your eyes, avoiding your eyes themselves.
Leave it on until it dries, about 15 minutes.
Then rinse the area well with warm water and wash your hands with soap and water.
Hope that helps.
_________________________
-/\/eofate
"Efforts and courage are not enough, without purpose and direction."
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#754740 - 08/27/08 04:50 PM
Re: Which medication gives you the most relief
[Re: vba195]
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GRAND Pooh-Bah
Registered: 11/07/06
Posts: 1902
Loc: The Doors of Perception
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I don't have FM, but my Mother does and she wouldn't go a day without taking her Lyrica. I have taken it as a potential CP med and I was surprised at how effective it was. If I could afford it I would take it for CP. My Mom is on: EffexorXR 225mg - depression Fentanyl 100mcg - pain Zanaflex 6-8mgs - muscle tension Mobic 15mg - inflammation Klonopin 2mg - anxiety Lyrica is 150mg I believe - FM pain Myrapex - RLS? Don't know the dose and some old drug that she breaks into 1/4 and lets it melt on her tongue- for sleep. Whatever it is she had to stop taking Ambien and Elavil before starting it. She has good days and very bad days. The EffexorXR, Fentanyl, Lyrica and Mobic she takes religiously. The others not so much, they make her tired and so she adjusts time and dosage daily. Right now she seems to be doing better. Take the Lyrica vba195. I was scared too and it's nothing like the horror stories.
Edited by pillar (08/27/08 04:54 PM)
_________________________
"God deliver us from such criminal imbecility."
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#773856 - 09/27/08 02:18 AM
Re: Which medication gives you the most relief
[Re: Code21]
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Pooh-Bah
Registered: 09/04/08
Posts: 1293
Loc: Driving the LOVE BUS
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medications? nothing actually worked' for me. maybe wellbutrin helped for a few weeks but soon failed, then I had to go off them -they were making me depressed and horribly anxious. I can say what doesnt work: asprin, ibuprophen, tylenol, Tramadol, even darvecett isnt working. The only thing that worked is what I learned by accident  after elective surgery I had some kind of time release morphine, it was the first time I felt 'ok' all around in the previous 8 years of Fibro. Then after my appendix was taken out - I was given percacet'. Again, I felt 'ok' with no pain of fibro ' for all the 12 years of fibro-pain. now recently Ive been in an extreme flare'''' that wont go away. a dear friend of mine gave me just a few oxy. YES.. I felt OK, not dizzy not euphoric..but Capable. that is my dilemma here, no doc will give me a script for an opiate, not even a low dose closely monitored test. so.. its still my MED of choice, whether I get it or not 
_________________________
...cast your dancing spell my way~ i promise to go under it
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#776215 - 09/30/08 07:43 PM
Re: Which medication gives you the most relief
[Re: Code21]
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GRAND Pooh-Bah
Registered: 11/07/06
Posts: 1902
Loc: The Doors of Perception
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Wow Pillar, your poor Mom. Is all of that for FM? Sorry if I'm being too personal. I've had a lot of those medications in the past. Just not the fentanyl - does she get that for her FM or something else? I've heard of Dr's giving the Fentanyl for FM before... I really hope my pain never gets that bad.  Mirapex is for RLS - I tried it once and it gave me horrible headaches. I took Sinemet(sp?) for a while as well, until I started having real bad, weird nightmares. My RLS, however, has seemed to fade away since I started doing yoga and really stretching my legs. In fact, this is the first time in a long while I've thought about my RLS! *knocking on wood now* No she has a heart condition, TIA's, diabetes and arthritis. The Fentanyl is more for her headaches caused by several herniated discs, in her neck. She takes Mobic and sometimes prednisone for the FM. Our doc put her on Ritalin, for energy today and I'm wondering if Provigil wouldn't have been a better choice? She has high-blood pressure already(takes meds for it) and a serious heart condition plus the mini strokes. Won't Ritalin raise her BP and put her at greater risk for stroke and heart attack then Provigil would? She has excellent BCBS ins., so payment isn't a problem. I just really question the use of Ritalin as a stimulant, when her problem is poor sleep schedule/routine. Any thoughts or comparisons? She's only 55 and I would be crushed if I lost my Mom. I worry about her daily and try my best to keep her stress level down. I take her to most doc appointments and check in every 2-3 days to see if she needs anything. Her husband thinks there's nothing wrong with her but the doctors and the meds. He had the audacity to come home 2 days ago and [censored] at her for not sweeping the floor. When she explained she was in severe pain he told her to do it sitting in a chair!! I want to shove that chair so far up his azzhole he'll be tasting casters for months! I've tried to get her to come on here or join a support group for FM and chronic pain but she's too embarrassed. This prick wants her to grin and bear sex, which causes her extreme pain and bleeding, just to satisfy his needs. Jerk-Off or get the [censored] out of my Mom's life if he feels that way, you know! I've fought him once over [censored] like this and have court in 2 weeks because of it. But I won't let him push my Mom around and attempt to make her feel like less of a woman because of a disease, she can't control. I don't really know how to help her any more than I already am, but I need to be doing more for her.
_________________________
"God deliver us from such criminal imbecility."
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