scruf, have you had any luck finding a better doctor?

after one doc told me ' your too young and not in a wheelchair,you dont h$ave cancer,so i cant treat you for pain that i cant see'.
after that experience,from a female doctor no less, i have a huge fear of seeing doctors again.
she made me feel so low,and she discriminated me.

i havent seen a doc since then,she took hope out of me.
then the pain specialist told me ' fibro is a mental disorder found mostly in women. the only treatment you will benefit from is counseling.'

yeah,im scared of doctors now.
and then there was the doctor who lost her dea license and didnt tell any of her patients before hand. she left us without a refferal and we had no meds.

in just 2 short years, i have seen the worst of the worst,and have little to no hope for the medical community.


scruf, i hope you still have hope and can get releif.

as for the thyroid subject,anyone wh$o would like some information,please dont hesitate to pm me or leave me a note here.
i dont want to keep getting off subject with this thread.


to answe that one question, yes, you can have 2 autoimmune disorders at once.
trust me, i know because i have both hypothyroid and fibro. let me tell you how fun it is to be stuck in this body. and im in my early 30's. i have a long time to go!

hypothyroid is the slowing of the metabolism.
hyperthyroid is the speeding up of the metabolism.
thyrotoxicosis is when negative antibodies are made from the gland and these negative hormones can poison your own body.

i have 'hoshimotos disease' which is a technical name for hypothyroid.
i was in and out of the hospital for 3 months, till one doctor was able to pinpoint what was wrong.
i racked up $3000.00+++ in bills before i got diagnosed.

and they tried to keep me in the hospitla becuase i was in hysteria for months.
all i needed was xanax till someone diagnosed me.
xanax helped my hysteria during that time.

please write me if you need info!!

Please don't do that konagirl. Your posts are important and you weren't even the one that changed the title. I wish I were in Kona with you right now.

konagirl, please don't take it so seriously, wasn't policing the thread. no need to stop posting!

when I first started on the board, I did the same thing by typing in that little area above the main body of the post and got chewed out. couldn't figure out why it was so important until I noticed the thread began to change titles back and forth all the time and I could never find it.

it's easy to fix, no biggie.

It's Back... :

Found this article about going to the dentist with FM.
http://fibromyalgia.ncf.ca/dsdental.htm

I hope its ok putting it in this thread.

Mt doc laughed outload and rolled her eyes when the subject of fibro came up. Good thing her assisstant brought it up as chit chat. Otherwise I would not have known her attitude about it.

Coins

you have got to be kidding,the doctor laughed about it!
wtf?
what is wrong with the doctors nowadays? are the completely ignorant?
did they go to school and take the oath?
or are they playing dress up and talking out their arses?

i will go with the latter of the 2.
how does a doctor deny a disease that thousands have?

wheres the funniness of that?have this doctor come over to my house and i will show her what this disease is all about.

ignorance is bliss!

My mother in law went to the doctor last week and she came home and said that she was diagnosed with fibro. (she said they DO have a way to test) She also has lupus, but she plainly said there was a way to tell if someone had fibro, per the doctor......I think I am going to get checked out myself.....

This is for everyone,not just coins2.
If a dr says or does something that denies or makes fun of FM(or any other problem,but specifically FM) you/we/I need to write a VERY polite letter to your governing medical body and just relate the story as succinctly as possible.
Without making a big fuss,in other words,leave emotion out of it,state your feelings about the Dr's attitude towards FM,and make it clear that the governing body needs to address the ignorance of dr's when it comes to FM.
If enough people do this,action has to be taken.
The reason for writing is not to try to get the dr in any trouble.It's to bring to the attention of the appropriate authority,the need to educate dr's about FM and dealing with FM patients.
Seriously,it needs to be done,and we will all benefit.

Yes most dr. think you are crazy when you say you have fibromyalgia. They just want to put you on antisepressants and sleeping pills. I have found a wonderful dr in Springfield Mo. He tests hormone levels, adrenlene levels. and bowel bacteria. So if you can find a dr who will do this things. Also take you temp everyday if it runs low 97.4 ish or below this a tyroid problems wilsons syndrome.
I have felt wonderful for 2 years. But just recently had a total hysteretomy and gallballder surgery, and have experienced a big set back. Will let you know when I see my dr again.
Not crazy in mo

This does not pertain to fibro but rather, this Wilson's syndrome you reference.

I have long maintained that I have a thyroid problem. I diet and diet, and exercise, eat right, etc., and if I am lucky, I DO NOT GAIN WEIGHT, or I lose very, very little. We're talking a few pounds over 3 months, that kind of thing. The last time I dieted for a full 6 weeks and worked out like crazy, I actually GAINED weight.

My thyroid testing has shown normal levels, but I've never been convinced. When I saw your note about body temperature level, it made me think: I just had a lot of medical issues the last couple of years, so I had my temp taken at the doctor's office a lot. I am always under 98.6 -- always, without fault.

I am trying to find info on Wilson's but am coming up short. Do you personally have this, do you take something for it, has it helped? Any more info would be appreciated while I continue to do research. I'm really frustrated and don't know how to "fix" a problem doctors say is not present!

*edit: I have since researched just a tad about it,.. and created a Wilson's Syndrom topic so to leave this one alone: -- The topic can be found here:

http://www.drugbuyers.com/freeboard/ubbthreads.php?ubb=showflat&Number=708194#Post708194

*Thanks



Interesting about the 'low body temp'. I, too, always have a low body temperature.

I am generally always 97.x , everytime I, or the doc takes it.

Without research, and hopefully not to get the topic too off -- Does this indicate anything by itself,.. ?

I see verify is asking much the same in a different manner.


As for Fibro,.. I know many doctors will do the pressure point tests and if you do not respond to them (negative) they will dismiss you. Fibro can exist without the sensitivity to the pressure points.. it often does. So one must, unfortunately, "doctor shop", until a sufficient doctor that will treat the condition is found.


Thanks,

I've been told that "average" temp can be anywhere from 97.6 to 99.6 but I don't totally buy it. Before I had my morning temp was always around 96.9. After treatment, it now runs around 97.6 to 98.0

I've tried to find out if, because my "average" temp is under 98 degrees, if I'm not feeling well and my temp is, say, 98.8-99.0, does that mean I have a fever? I've never been able to get a clear answer.

Scruf,

There is no test for fibromyalgia, which does not mean that it does not exist.

40 or 50 years ago there was no test for severe menopausal symptoms, some women were put in mental institutions due to their severe symptoms. Today there is a blood test and medical treatments.

Many years ago people with pneumonia or TB were diagnosed as having "comsumption", with no treatment or tests for those problems.

With so many with, what is termed phony "fibromyalgia" possible to obtain narcotics, some day there will be diagnostic tests for it with appropriate treatments. It exists. There just is no test for it yet.

Blondie, excellent post that puts the problems with fibromyalgia into historical perspective.

I agree -- Nice write up Blondie. (Bravo)

Only part I would have to disagree on is the possibility that it (fibro) might *not* exist. I absolutely am convinced that it does.. otherwise I believe you are spot-on.

There are actually tests that can be performed, but they are *not* exact or entirely conclusive. Very , how should I put this,.. ermm.. Elementary , if you will.

I just read the book "Insomniac" by Gayle Greene, and in it she talks about how difficult it's been to get doctors and researchers to take the problem of insomnia seriously. It's just such a big problem, and can be caused by different things and can affect people so differently, doctors are much more comfortable diagnosing apnea and leaving it at that.

I bring this up because in the book, she compares this type of discrimination to pain control and also fibro. Communities of sufferers have been able to band together and get researchers, doctors and drug companies to take notice of them, which has led to significant findings. Look at breast cancer, for example.

Perhaps as fibro awareness grows, and sufferers and concerned family and friends join together, the cause of this disease can be targeted (and then so can the treatment). And of course, I hope the same for chronic pain control and education.

I know it must be hard to have a "phantom" illness and get treatment, because I have talked with fibro patients and I've seen how hard it is for those of us with diagnosed, specific conditions. Let's hope the power of the internet can help us unite and demand change.

I just found an excellent site on Wilson's syndrome. There is also an "ebook" that can either be read online or printed out.

http://www.wilsonsthyroidsyndrome.com

I had not heard of this syndrome so that is why I decided to research it. I feel it is probably what is wrong with me and that I have probably struggled with it since puberty - maybe earlier.

This site lists doctors who practice the treatment protocols developed by Dr. Wilson. I am definitely going to investigate further and probably go see one of them.

Thank you so much for the link! I appreciate the help.

I printed out the e-book - it's about 2 inches thick - and put it in a binder. I am going to take it to my Nurse Practitioner and she if she would be willing to read it and then look into following Dr. Wilson's protocol. I could be her "guinea pig". If she isn't willing to do it, then I am going to see one of the doctors listed on his website as soon as I can get to Portland or somewhere else nearby where there is a doctor who follows this protocol for treatment.

I have long suspected my youngest son had a thyroid problem but his test came back "normal". His average body temp is low 97 to high 96. I plan to also have him checked out. It couldn't hurt.