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#852261 - 03/02/09 06:55 PM Re: Which medication gives you the most relief ***** [Re: JokerOwling]
cjcfleur Offline
Pooh-Bah

Registered: 08/31/04
Posts: 986
Stay away from the narcotics as long as possible. Lyrica is being touted as the new fibromyalgia savior, but what the drug really does is control seizures. It is an antiepileptic. They have been looking at these epilepsy drugs for years because they found that not only do they interupt the siezure patterns, patients were reporting pain relief in other areas. Nerontin was one of the early seizure drugs, and in 1990 FDA allowed them to be prescribed for neuropathy, which is pain in the lower legs that many spinal patients and diabetics have. So moving up to 2007-8 you have Lyrica which is not moving well because folks with epilepsy were putting on 20-30 pounds and didn't like this.........in fact my doc told me to steer clear, But the studies showing that it really did help with the fibro pain, so although lyrica has been around for 7 years the general public thinks it is brand new. So my doc put me on topamax, which thank heavens causes some patients to lose weight. So I have epilepsy.....but I also have fibromyalgia. I have severe degenerative disc and joint disease in my cervical and lumbar spine with resulting neuropathy in my legs and arms. The cervical spinal arthritis will trigger a migraine if I sleep crooked.

The topamax has been a miracle for me. I take 100mg at night and 100mg in the am. And that is the low end of the dosing. It also enhances my pain meds so I was able to cut back on taking those. I was grateful for the epilepsy.

Big problem though if you don't have epilepsy or migraines is whether or not insurance will pay for this treat. It is due to lose it's patent and go genericbut for the time being it is just sold as brand in America for about $400.00 a month. So to make a long answer longer, best pain control topamax and Tramadol
_________________________
Pain is whatever the experiencing person says it is, existing whenever the experiencing person says it does.

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#853659 - 03/04/09 08:53 PM Re: Which medication gives you the most relief [Re: cjcfleur]
genethebean1 Online   content
GRAND Pooh-Bah

Registered: 01/08/07
Posts: 3315
Loc: The Boonies
So, if you wanted to go to a clinic for a comprehensive evaluation of, and treatment for, FM, where would you go? What are, say, the top five treatment centers for FM in the country?

I think it's time I really look into this. I was told many years ago that I probably had FM but I was in my early 30's and didn't want a "label" so I didn't pursue further evaluation. But, given how I've been feeling for the past few years, I think a thorough evaluation is a good idea.
_________________________
The true triumph of reason is that it enables us to get along with those who do not possess it - Voltaire

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#854053 - 03/05/09 12:02 PM Re: Which medication gives you the most relief [Re: genethebean1]
MarkhW Offline
Journeyman

Registered: 04/20/06
Posts: 99
I would suggest you first get a copy of the book "From Fatigued to Fantastic, 3rd Edition." (its important to get the latest edition) You can find it here for example:
http://www.amazon.com/gp/product/1583332898
(Be aware that some sites are selling the old 2nd edition at discounted prices, but it would be a waste of money compared to the current 3rd edition.)

Then if you like the general approach to treatment you find in the book, you could try getting an appointment at one of these places:
http://www.endfatigue.com/resources/practitioners.html

I went of them and I have to say they were very thorough. They took 28 vials of blood for analysis and found something wrong my other doctors never did. Also, they offer IV infusions that many people find help greatly. Mine did. I felt better for a week after having one. Unfortunately, that clinic is too far away for me to go get another infusion every month, but I would absolutly do it if I could.

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#854182 - 03/05/09 03:19 PM Re: Which medication gives you the most relief [Re: MarkhW]
genethebean1 Online   content
GRAND Pooh-Bah

Registered: 01/08/07
Posts: 3315
Loc: The Boonies
Thanks, Mark, I will check out that book.
_________________________
The true triumph of reason is that it enables us to get along with those who do not possess it - Voltaire

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#900264 - 06/24/09 07:47 PM Re: Which medication gives you the most relief [Re: Tiades]
kratomgirl Offline
Stranger

Registered: 06/15/09
Posts: 17
Loc: Fargo
I take Neurontin, Fluoxetine for anxiety, Trazadone for sleep, Soma, Flexeril, and Kratom (for pain). My doctor did have me on Hydrocodone for a while but I'm done with that. All in all, I have to say that even with all of the stuff I'm taking, I'm still fairly uncomfortable, but a lot of it has to do with the humidity we're having right now. The bitter cold is bad, too. I feel like the tin man when he hasn't been oiled!!
_________________________
~The wisest mind has always something yet to learn~


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#906654 - 07/11/09 02:14 AM Re: Which medication gives you the most relief [Re: kratomgirl]
sarahte Offline
Veteran

Registered: 09/04/08
Posts: 732
Loc: MidWest
Has anyone tried naltrexone (LDN) for Fibro / Restless Leg?
I found a site promoting its trial for many ailments.

http://www.lowdosenaltrexone.org/index.htm#What_is_low_dose_naltrexone

I've been off all meds for a few months but am beginning to sense one of those special flares coming. the 6 monther kind!
pissedoff
_________________________
...cast your dancing spell my way~ i promise to go under it

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#907727 - 07/14/09 06:46 AM Re: Which medication gives you the most relief [Re: sarahte]
sadie9 Offline
Enthusiast

Registered: 09/20/07
Posts: 213
Loc: ohio
I too have fibro,(over 25 yrs.), tried all the meds but nothing works like Kratom!

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#907859 - 07/14/09 02:19 PM Re: Which medication gives you the most relief [Re: sadie9]
sarahte Offline
Veteran

Registered: 09/04/08
Posts: 732
Loc: MidWest
Hi sadie,

Do you use Kratom everday? or just when pain flares are bad?
_________________________
...cast your dancing spell my way~ i promise to go under it

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#908038 - 07/15/09 01:41 AM Re: Which medication gives you the most relief [Re: cjcfleur]
tumorman Offline
Enthusiast

Registered: 08/19/08
Posts: 241
Originally Posted By: cjcfleur
Stay away from the narcotics as long as possible. Lyrica is being touted as the new fibromyalgia savior, but what the drug really does is control seizures. It is an antiepileptic. They have been looking at these epilepsy drugs for years because they found that not only do they interupt the siezure patterns, patients were reporting pain relief in other areas. Nerontin was one of the early seizure drugs, and in 1990 FDA allowed them to be prescribed for neuropathy, which is pain in the lower legs that many spinal patients and diabetics have. So moving up to 2007-8 you have Lyrica which is not moving well because folks with epilepsy were putting on 20-30 pounds and didn't like this.........in fact my doc told me to steer clear, But the studies showing that it really did help with the fibro pain, so although lyrica has been around for 7 years the general public thinks it is brand new. So my doc put me on topamax, which thank heavens causes some patients to lose weight. So I have epilepsy.....but I also have fibromyalgia. I have severe degenerative disc and joint disease in my cervical and lumbar spine with resulting neuropathy in my legs and arms. The cervical spinal arthritis will trigger a migraine if I sleep crooked.

The topamax has been a miracle for me. I take 100mg at night and 100mg in the am. And that is the low end of the dosing. It also enhances my pain meds so I was able to cut back on taking those. I was grateful for the epilepsy.

Big problem though if you don't have epilepsy or migraines is whether or not insurance will pay for this treat. It is due to lose it's patent and go genericbut for the time being it is just sold as brand in America for about $400.00 a month. So to make a long answer longer, best pain control topamax and tramadol


Wow this really illustrates how different peoples bodies are 100mg topomax one time paralyzed me for 7 hours trip to the ER whole meal deal This was the midication scare of my life. Lyrica …I was on that for one week and no effects until I stopped taking it I felt withdrawals worse than any narcotics I have ever been on. I have been scared of anything new since topomax dropped me in 30 minutes 1st dose
TM

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#908039 - 07/15/09 02:07 AM Re: Which medication gives you the most relief [Re: genethebean1]
tumorman Offline
Enthusiast

Registered: 08/19/08
Posts: 241
Originally Posted By: genethebean1
So, if you wanted to go to a clinic for a comprehensive evaluation of, and treatment for, FM, where would you go? What are, say, the top five treatment centers for FM in the country?

I think it's time I really look into this. I was told many years ago that I probably had FM but I was in my early 30's and didn't want a "label" so I didn't pursue further evaluation. But, given how I've been feeling for the past few years, I think a thorough evaluation is a good idea.


Genethebean ,, One good thing currently doctors are getting more and more convinced it is a real deal there are still doctors that think it is a catch all diagnosis but there are many that are treating there pacients like they should with respect and compasion so you are in a better time to get a evaluation. Call do your research locally see what the doctors feelings are on fibro are first before you blow cash just to here some BS and given some antidepressant!!

Tm

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