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#463254 - 02/26/07 06:51 PM newly diagnosed with fibromalgia, need advice and info?
moodylee Offline
Member

Registered: 03/23/05
Posts: 134
as if things couldnt get any worse,along with chronic pain everyday, i was just diagnosed with fibromyalgia as well.the doctor said elavil, an antidepessant works for alot of people, and a good multi-vitamin, and exercise.if theres anyone else in here who has this, i would like to know what im dealing with, and what works best for you. any info would be appreciated, thanks.

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#463255 - 02/26/07 07:35 PM Re: newly diagnosed with fibromalgia, need advice and info?
trixxie Offline
Pooh-Bah

Registered: 05/23/03
Posts: 1079
Loc: ID
And what about your tethered cord? are they suggesting surgery?
I am sorry that this is a new curve ball thrown atcha..Hang in there..
_________________________
Dream outloud

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#463256 - 02/26/07 08:52 PM Re: newly diagnosed with fibromalgia, need advice and info?
mynose Offline
Member

Registered: 01/04/06
Posts: 127
IME, the best thing you can do is get a second opinion. and a third and fourth and so on...A fibro diagnosis is a tricky thing. some doctors see it as a convenient clearing house for people with "unexplained" chronic pain. some dr.s don't recognize it as a diagnosis at all. it may take a while but try to rule out EVERY other possibility. unfortunately, the usual course of treatment is anti-depressants. this works for some people, but maybe works isn't the right word. i think that it addresses the symptoms, rather than the underlying causes, which continue to elude many people. there is no one profile of fibro; many people suffer for many different reasons, in many different ways. anti-depressants don't make you hurt less, they just make you kind of goofy and happy about being in pain. the thing that has worked trememdously for me, after myriad courses of treatment over a decade, is establishing good sleep hygiene. i'm sure you'll read more about this as you become familiar with your dr.s recommendations. zanaflex works for me, whereas all kinds of other things, benzos, cyclobenzaprine, ssri's, skelaxen, vicodin, etc. just took the edge off. their's a huge wealth of info on fibro here- i think the current thread goes back for several years. good luck.

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#463257 - 02/27/07 06:37 AM Re: newly diagnosed with fibromalgia, need advice and info?
moodylee Offline
Member

Registered: 03/23/05
Posts: 134
as far as the tethered cord, the surgeon had no answers. he said my spinal cord was stretched way down, he wouldnt tell me anything until he consulted with another doctor, i had to leave my films with him, and hes supposed to call me in a week or two.i have no idea what hes going to recomend yet.

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#720928 - 06/28/08 02:38 PM Re: newly diagnosed with fibromalgia, need advice and info? [Re: moodylee]
surly Offline
Newbie

Registered: 10/14/04
Posts: 31
I'm not sure if many of you people know it, but taking an antibiotic in the fluoroquinolone class usally causes all the syptoms of FM and more. Pain, insomnia, tendon aches, muscle aches, anxiety attacks, P.N., depression and many more are all related to taking either : Cipro, Levaquin, Avelox, Floxcin and others in this class. These antibiotics can have devastating effects on your CNS and your body.

There are many forums filled with people injured by these
so called "safe" antibiotics.

Dr's are not aware of this problem and the drug makers are covering it up. The FDA is doing nothing to make them put warning labels on these antibiotics.

Public Citizen is now in the process of suing the FDA to make them enforce the warnings. Many of these side effects come on months after taking the drug, and can be permanent.

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